- Email: [email protected]
Lessons Learned
E D I T O R ’ S
Lois Davis,
M E S S A G E
MSN, RN, VA-BC, Managing Editor
Lessons Learned
T
he Patient-Centered Outcome Research Institute (PCORI), an independent, nonprofit, nongovernmental organization that was authorized by Congress in 2010, is dedicated to making health research patient-centered and stakeholder-driven. PCORI does this through a focus on comparative clinical effectiveness research (CER). I had the opportunity to attend the PCORI Annual Meeting November 17-19, 2016, at the Gaylord Convention Center in National Harbor, Maryland, and was struck by what we can learn from organizations like PCORI as we create our research agenda, advocate for vascular access professionals, disseminate vascular-accesserelated facts and best practices, and strive to improve safety and the patient experience as they relate to vascular access. CER compares different interventions and strategies to prevent, diagnose, treat, and monitor health conditions. This type of research is meant to inform patients, providers, and decision makers, responding to their expressed needs about which interventions are most effective for which patients under specific circumstances.1 This offers patients, caregivers, and other stakeholders the information they need to make important health care decisions. PCORI helps to identify research questions, fund patient-centered comparative CER, and disseminate the results in ways that end-users will find useful and valuable.2
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What does this all have to do with the Association for Vascular Access? As you read the President’s Message you will see that a goal for our organization this year is the creation of a formal patient advocacy branch. This is a worthwhile endeavor and I learned some important things at the PCORI meeting that really drove this home to me: d
d
d
d
PCORI began funding research in 2012 guided by their national priorities: d
d
d
d
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Assess prevention, diagnosis, and treatment options by comparing the effectiveness and safety of alternative prevention, diagnosis, and treatment options to see which ones work best for different people with a particular health problem; Improve health care systems by comparing health system-level approaches to improving access, supporting patient self-care, innovating use of health information technology, coordinating care for complex conditions, and deploying workforce effectively; Communicate and disseminate research by comparing approaches to providing comparative effectiveness research information, empowering people to ask for and use the information, and supporting shared decision making between patients and their providers; Address disparities by identifying potential differences in prevention, diagnosis, or treatment effectiveness, or
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Vol 22 No 1
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preferred clinical outcomes across patient populations and the health care required to achieve best outcomes in each population; and Accelerate patient-centered outcomes research and methodologic research by improving the nation’s capacity to conduct patient-centered outcomes research by building data infrastructure; improving analytic methods; and training researchers, patients, and other stakeholders to participate in this research.2
To develop the right research questions, the end-users (ie, patients, caregivers, and stakeholders) need to be involved; Patient and family caregiver engagement needs to happen early on in the research; If you ignore family caregivers you create new patients; and Patients may not have adequate access to the most up-todate evidence, specifically scientific journals that are difficult to access, expensive, or use scientific jargon that may be difficult to understand.
All of the above supports the mission of the Association for Vascular Access. References 1. US National Library of Medicine, Health Services Research Information Center. Comparative Effectiveness Research (CER). https://www.nlm.nih.gov/hsrinfo/cer.html. Accessed December 20, 2016. 2. Patient-Centered Outcomes Research Institute. About us. http://www.pcori.org/about-us. Accessed December 20, 2016.
2017
http://dx.doi.org/10.1016/j.java.2016.12.007 Copyright © 2017 ASSOCIATION FOR VASCULAR ACCESS. Published by Elsevier Inc. All rights reserved.
Lois Davis,
M E S S A G E
MSN, RN, VA-BC, Managing Editor
Lessons Learned
T
he Patient-Centered Outcome Research Institute (PCORI), an independent, nonprofit, nongovernmental organization that was authorized by Congress in 2010, is dedicated to making health research patient-centered and stakeholder-driven. PCORI does this through a focus on comparative clinical effectiveness research (CER). I had the opportunity to attend the PCORI Annual Meeting November 17-19, 2016, at the Gaylord Convention Center in National Harbor, Maryland, and was struck by what we can learn from organizations like PCORI as we create our research agenda, advocate for vascular access professionals, disseminate vascular-accesserelated facts and best practices, and strive to improve safety and the patient experience as they relate to vascular access. CER compares different interventions and strategies to prevent, diagnose, treat, and monitor health conditions. This type of research is meant to inform patients, providers, and decision makers, responding to their expressed needs about which interventions are most effective for which patients under specific circumstances.1 This offers patients, caregivers, and other stakeholders the information they need to make important health care decisions. PCORI helps to identify research questions, fund patient-centered comparative CER, and disseminate the results in ways that end-users will find useful and valuable.2
d
What does this all have to do with the Association for Vascular Access? As you read the President’s Message you will see that a goal for our organization this year is the creation of a formal patient advocacy branch. This is a worthwhile endeavor and I learned some important things at the PCORI meeting that really drove this home to me: d
d
d
d
PCORI began funding research in 2012 guided by their national priorities: d
d
d
d
12
Assess prevention, diagnosis, and treatment options by comparing the effectiveness and safety of alternative prevention, diagnosis, and treatment options to see which ones work best for different people with a particular health problem; Improve health care systems by comparing health system-level approaches to improving access, supporting patient self-care, innovating use of health information technology, coordinating care for complex conditions, and deploying workforce effectively; Communicate and disseminate research by comparing approaches to providing comparative effectiveness research information, empowering people to ask for and use the information, and supporting shared decision making between patients and their providers; Address disparities by identifying potential differences in prevention, diagnosis, or treatment effectiveness, or
j
JAVA
j
Vol 22 No 1
j
preferred clinical outcomes across patient populations and the health care required to achieve best outcomes in each population; and Accelerate patient-centered outcomes research and methodologic research by improving the nation’s capacity to conduct patient-centered outcomes research by building data infrastructure; improving analytic methods; and training researchers, patients, and other stakeholders to participate in this research.2
To develop the right research questions, the end-users (ie, patients, caregivers, and stakeholders) need to be involved; Patient and family caregiver engagement needs to happen early on in the research; If you ignore family caregivers you create new patients; and Patients may not have adequate access to the most up-todate evidence, specifically scientific journals that are difficult to access, expensive, or use scientific jargon that may be difficult to understand.
All of the above supports the mission of the Association for Vascular Access. References 1. US National Library of Medicine, Health Services Research Information Center. Comparative Effectiveness Research (CER). https://www.nlm.nih.gov/hsrinfo/cer.html. Accessed December 20, 2016. 2. Patient-Centered Outcomes Research Institute. About us. http://www.pcori.org/about-us. Accessed December 20, 2016.
2017
http://dx.doi.org/10.1016/j.java.2016.12.007 Copyright © 2017 ASSOCIATION FOR VASCULAR ACCESS. Published by Elsevier Inc. All rights reserved.