- Email: [email protected]
CAREGIVER BURDEN ASSOCIATED WITH BEHAVIORAL AND PSYCHOLOGICAL SYMPTOMS OF DEMENTIA IN KOREAN ELDERLY
Poster Presentations: P2 as a testimony of love towards the person they accompany. They will also search for group support more spontaneously than others. Conclusions: Thinking in terms of difficulties, satisfactions and strategies leads us to go from a model where the caregiver endures his or her situation to a dynamic model where this person evolves over the course of the disease. An interdependance exists between the different aspects of the caregiving experience. Different aspects which will mutually influence eachother to allow the family member to continue investing his time and himself in the accompaniment over a long period of time. P2-365
THE INFLUENCE OF PERSONALITY ON THE CAREGIVING EXPERIENCE
Audrey Rieucau1, Jean-Philippe David2, Isabelle Fromentin2, Catherine Bungener1, 1Paris Descartes University, Boulogne Billancourt, France; 2Henri Mondor University Hospital, Limeil Brevannes, France. Contact e-mail: [email protected] Background: The first research papers which studied caregiving experiences were centered on the notion of ’burden’ (Braitwaithe, 1992). Since then, numerous authors have presented both negative repercussions and secondary benefits which can be obtained from the caregiving relationship (Fortinsky et al., 2002). It appears that non-negligeable interindividual differences exist, both as concerns positive and negative aspects of the caregiver’s role (Buyck et al., 2011). These differences need to be objectivized. According to the interactionnist model, human behavior is determined by an interaction between what the person is, particularly his personality, and the situation with which he is confronted (Tett and Burnett, 2003). We propose to study how personality - according to dimensions of the Big Five model - influences the way the caregiving role is experienced. Methods: 113 caregivers of persons with Alzheimer’s disease completed clinical scales to evaluate personality (NEO PI-R) and the different aspects of the caregiving experience: difficulties, satisfactions and strategies. Results: Neuroticism influences the emotional aspects of the helper’s experience, both as concerns the difficulties to which this person is sensitive and the satisfactions he or she will obtain, but also the strategies which will be used. The great need for strong sensations and positive emotions connected to Extraversion do not mesh well with a situation which requires one to adapt his or her rhythm to that of the patient. Openness to experience, on the other hand, has a protective effect concerning several difficulties likely to be encountered by the helper. Agreeableness is linked to the capacity to experience satisfactions and finally Conscientiousness makes it easier to use a variety of strategies. Conclusions: Depending on their personality, all people are not at risk of being fragilized by these same difficulties encountered in caregiving experience, nor will they use all the same strategies or obtain the same secondary benefits. These inter-individual differences inherent in the caregiving experience should be taken into account in studies assessing the impact of the various "aid to caregivers" programs. P2-366
CAREGIVER BURDEN ASSOCIATED WITH BEHAVIORAL AND PSYCHOLOGICAL SYMPTOMS OF DEMENTIA IN KOREAN ELDERLY
Bong Goo Yoo1, Jin Hyung Lee1, 1Kosin University College of Medicine, Busan, South Korea. Contact e-mail: [email protected] Background: Behavioral and psychological symptoms of dementia (BPSD) are very common and associated with high level of distress both dementia suffers and their caregivers. The purpose of this study was to identify the impact of BPSD on the burden of their caregivers in Korean elderly. Methods: The subjects were 144 in-home dementia elderlies living with their caregivers. Caregivers were interviewed to determine the severity of BPSD and caregiver burden using Burden Interviews, the Caregiver Burden Inventory, and the Korean version of the Neuropsychiatric Inventory (K-NPI). Results: Approximately seventy percent of the caregivers were women. Forty-two percent of the caregivers were spouses. Apathy/indifference was the most common symptom, followed by depression, agitation/aggression, irritability/lability, and anxiety. Caregiver burden was associated with apathy/indifference, disinhibition, irritability/lability, anxiety, and appetite/eating disorders in the
P613
K-NPI. Agitation, anxiety, apathy/indifference, irritability/lability, disinhibition, aberrant motor behavior, and appetite/eating disorders showed a significant correlation between K-NPI subscale and caregiver burden. Caregiver burden was affected more by the demented patient’s BPSD than conditions due to their decreased cognitive functions. Multiple regression analysis revealed that disinhibition and irritability/lability were independently associated with caregiver burden. Conclusions: Caregiver burden associated with BPSD is different for each symptom and does not always depend on frequency and severity of BPSD. These findings suggest that some symptoms such as disinhibition, and irritability/lability may affect the caregiver burden significantly. P2-367
ALZHEIMER’S DISEASE: A STUDY ABOUT FAMILY RELATIONS OF DAUGHTER CAREGIVERS
Deusivania Vieira Da Silva Falc~ao1, Julia S.N.F. Bucher-Maluschke2, 1 University of S~ao Paulo, S~ao Paulo, Brazil; 2University of Brasilia, Brasılia-DF, Brazil. Contact e-mail: [email protected] Background: This research aims at investigating the relationships between daughters and their family, focusing on their father or mother, possible or probable AD patients. Methods: The sample consisted of thirty-two daughters and their respective parents (six fathers and twenty-six mothers). We started from a bibliographical review, out of which we devised an open interview with a semi-structured format. This was recorded, transcribed and later analyzed according to the Bardin technique. We also used FAST (Family System Test), a tool consisting of a bi-dimensional investigation process with the view to analyzing, structurally and systemically, the subjects’ perceptions insofar as their family relationships went. Results: The results have pointed out that, upon receiving the news of the diagnosis, the majority of daughters and of their relatives reacted negatively. Prior and subsequent to the disease, the most highlighted sub-category was unfavourable family relationships (conflicts). Most daughters nurtured a sense of filial duty towards their parents - the most frequent reason to justify their caregiving role. It was also verified that the daughters perceived a hierarchical inversion of power regarding their Alzheimer mothers. Although before the disease, the former had no power over the latter, the daughters came to exercise this power later on. Nevertheless, it was clear that the daughters would rather exercise their authority less often, which reveals their discontentment with being, in fact, their mothers’ mothers at times. Even though the caregivers have realized the hierarchical inversion in relation to their mothers, the emotional bond (cohesion) towards their mothers did not grow less strong. Conclusions: That it is vital the promotion of public health policies which can enable the population to have a better understanding of Alzheimer’s disease, providing patients and their relatives with support. We also see the search for professionals as crucial when the disease is in its initial stage so as to facilitate treatment and to promote the health of the family. Having a great range of information about the disease may favour the family system when it comes to decision-making and to practical measures which can contribute to the emotional balance of those involved. P2-368
BECK ANXIETY INVENTORY (BAI) IN PATIENTS WITH ALZHEIMER’S DEMENTIA AND THEIR CAREGIVERS
Hae-Eun Shin1, Si-Baek Lee2, Jeong-Wook Park2, 1The Catholic University of Korea, Uijeongbu, South Korea; 2The Catholic University of Korea, Uijeongbu, South Korea. Contact e-mail: [email protected] Background: Several previous studies reported high prevalence of anxiety in patients with Alzheimer’s dementia (AD) and their caregivers. Beck Anxiety Inventory (BAI) consists of 21 questions about how the subject has been feeling in the last week, expressed as self-reported common symptoms of anxiety. The purpose of this study was to investigate the association of BAI scores and cognitive decline in the patients with AD and their caregivers. Methods: We assessed 122 patients with probable AD and their caregivers. BAI scores of the patients and their caregivers were used to assess symptoms of anxiety and the cognitive functions of the patients were
THE INFLUENCE OF PERSONALITY ON THE CAREGIVING EXPERIENCE
Audrey Rieucau1, Jean-Philippe David2, Isabelle Fromentin2, Catherine Bungener1, 1Paris Descartes University, Boulogne Billancourt, France; 2Henri Mondor University Hospital, Limeil Brevannes, France. Contact e-mail: [email protected] Background: The first research papers which studied caregiving experiences were centered on the notion of ’burden’ (Braitwaithe, 1992). Since then, numerous authors have presented both negative repercussions and secondary benefits which can be obtained from the caregiving relationship (Fortinsky et al., 2002). It appears that non-negligeable interindividual differences exist, both as concerns positive and negative aspects of the caregiver’s role (Buyck et al., 2011). These differences need to be objectivized. According to the interactionnist model, human behavior is determined by an interaction between what the person is, particularly his personality, and the situation with which he is confronted (Tett and Burnett, 2003). We propose to study how personality - according to dimensions of the Big Five model - influences the way the caregiving role is experienced. Methods: 113 caregivers of persons with Alzheimer’s disease completed clinical scales to evaluate personality (NEO PI-R) and the different aspects of the caregiving experience: difficulties, satisfactions and strategies. Results: Neuroticism influences the emotional aspects of the helper’s experience, both as concerns the difficulties to which this person is sensitive and the satisfactions he or she will obtain, but also the strategies which will be used. The great need for strong sensations and positive emotions connected to Extraversion do not mesh well with a situation which requires one to adapt his or her rhythm to that of the patient. Openness to experience, on the other hand, has a protective effect concerning several difficulties likely to be encountered by the helper. Agreeableness is linked to the capacity to experience satisfactions and finally Conscientiousness makes it easier to use a variety of strategies. Conclusions: Depending on their personality, all people are not at risk of being fragilized by these same difficulties encountered in caregiving experience, nor will they use all the same strategies or obtain the same secondary benefits. These inter-individual differences inherent in the caregiving experience should be taken into account in studies assessing the impact of the various "aid to caregivers" programs. P2-366
CAREGIVER BURDEN ASSOCIATED WITH BEHAVIORAL AND PSYCHOLOGICAL SYMPTOMS OF DEMENTIA IN KOREAN ELDERLY
Bong Goo Yoo1, Jin Hyung Lee1, 1Kosin University College of Medicine, Busan, South Korea. Contact e-mail: [email protected] Background: Behavioral and psychological symptoms of dementia (BPSD) are very common and associated with high level of distress both dementia suffers and their caregivers. The purpose of this study was to identify the impact of BPSD on the burden of their caregivers in Korean elderly. Methods: The subjects were 144 in-home dementia elderlies living with their caregivers. Caregivers were interviewed to determine the severity of BPSD and caregiver burden using Burden Interviews, the Caregiver Burden Inventory, and the Korean version of the Neuropsychiatric Inventory (K-NPI). Results: Approximately seventy percent of the caregivers were women. Forty-two percent of the caregivers were spouses. Apathy/indifference was the most common symptom, followed by depression, agitation/aggression, irritability/lability, and anxiety. Caregiver burden was associated with apathy/indifference, disinhibition, irritability/lability, anxiety, and appetite/eating disorders in the
P613
K-NPI. Agitation, anxiety, apathy/indifference, irritability/lability, disinhibition, aberrant motor behavior, and appetite/eating disorders showed a significant correlation between K-NPI subscale and caregiver burden. Caregiver burden was affected more by the demented patient’s BPSD than conditions due to their decreased cognitive functions. Multiple regression analysis revealed that disinhibition and irritability/lability were independently associated with caregiver burden. Conclusions: Caregiver burden associated with BPSD is different for each symptom and does not always depend on frequency and severity of BPSD. These findings suggest that some symptoms such as disinhibition, and irritability/lability may affect the caregiver burden significantly. P2-367
ALZHEIMER’S DISEASE: A STUDY ABOUT FAMILY RELATIONS OF DAUGHTER CAREGIVERS
Deusivania Vieira Da Silva Falc~ao1, Julia S.N.F. Bucher-Maluschke2, 1 University of S~ao Paulo, S~ao Paulo, Brazil; 2University of Brasilia, Brasılia-DF, Brazil. Contact e-mail: [email protected] Background: This research aims at investigating the relationships between daughters and their family, focusing on their father or mother, possible or probable AD patients. Methods: The sample consisted of thirty-two daughters and their respective parents (six fathers and twenty-six mothers). We started from a bibliographical review, out of which we devised an open interview with a semi-structured format. This was recorded, transcribed and later analyzed according to the Bardin technique. We also used FAST (Family System Test), a tool consisting of a bi-dimensional investigation process with the view to analyzing, structurally and systemically, the subjects’ perceptions insofar as their family relationships went. Results: The results have pointed out that, upon receiving the news of the diagnosis, the majority of daughters and of their relatives reacted negatively. Prior and subsequent to the disease, the most highlighted sub-category was unfavourable family relationships (conflicts). Most daughters nurtured a sense of filial duty towards their parents - the most frequent reason to justify their caregiving role. It was also verified that the daughters perceived a hierarchical inversion of power regarding their Alzheimer mothers. Although before the disease, the former had no power over the latter, the daughters came to exercise this power later on. Nevertheless, it was clear that the daughters would rather exercise their authority less often, which reveals their discontentment with being, in fact, their mothers’ mothers at times. Even though the caregivers have realized the hierarchical inversion in relation to their mothers, the emotional bond (cohesion) towards their mothers did not grow less strong. Conclusions: That it is vital the promotion of public health policies which can enable the population to have a better understanding of Alzheimer’s disease, providing patients and their relatives with support. We also see the search for professionals as crucial when the disease is in its initial stage so as to facilitate treatment and to promote the health of the family. Having a great range of information about the disease may favour the family system when it comes to decision-making and to practical measures which can contribute to the emotional balance of those involved. P2-368
BECK ANXIETY INVENTORY (BAI) IN PATIENTS WITH ALZHEIMER’S DEMENTIA AND THEIR CAREGIVERS
Hae-Eun Shin1, Si-Baek Lee2, Jeong-Wook Park2, 1The Catholic University of Korea, Uijeongbu, South Korea; 2The Catholic University of Korea, Uijeongbu, South Korea. Contact e-mail: [email protected] Background: Several previous studies reported high prevalence of anxiety in patients with Alzheimer’s dementia (AD) and their caregivers. Beck Anxiety Inventory (BAI) consists of 21 questions about how the subject has been feeling in the last week, expressed as self-reported common symptoms of anxiety. The purpose of this study was to investigate the association of BAI scores and cognitive decline in the patients with AD and their caregivers. Methods: We assessed 122 patients with probable AD and their caregivers. BAI scores of the patients and their caregivers were used to assess symptoms of anxiety and the cognitive functions of the patients were