- Email: [email protected]
P3-469: Impact of decline on older carers of adults with Down syndrome affected by dementia
Poster Presentations P3: identify problem areas and then implement a plan of action to insure the safety of an alleged victim. Results: This presentation should assist the social worker with the tools necessary to investigate a situation, describe it’s origins (abuse, neglect or exploitation), and recommend ways to work effectively with a victim and care provider to decrease such situations in the future. Conclusions: In conclusion, the relevance of this presentation to conference attendees is that it assists professionals involved with techniques, ideas and tips on assessing a situation and involving an entire community network to insure the safety of an alleged victim if that is what is required. This presentation involves the interpretation of an alleged victim’s reality and that it is okay to step out of our own reality in order to better understand what is occurring so we can help. P3-468
THE NATURE OF THE DISEASES THE AGED ARE FACING IN UGANDA
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Mwambu Margaret Jane Jane, Nkumba University, Kampala, Uganda. Contact e-mail: [email protected]
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Background: I was born by mr and mrs Mukata, in a village called Kamonkoli, Buduka distract. l started with my education in 60s in Kamonkoli primary school, then l joined Namengo Girls, then after l joined Kisiki college Namutumba for my secondary eduction, then l joined Nkumba , then after l joined Kampala international universty. I started an NGO for the aged in 2005, its a christian organization, caring for the aged, widows, orphans and people living with H.I.V/Aids, l started with 50 members, in 2005 but right now our organization is caring for over 200 members and above. Methods: Our methods, that we use is to make sure that we care for the aged, by giving them food, clothings, educating orphans by providing them with school fees, food, clothigs etc and caring for the widows, people living with H.I.V/Aids, we provide the above to them. but since we are in a third world we can not afford to care for all the members , so on that issue we request you kindly to fund our organization. Results: Results they reduce pressure for the above, by not getting sick etc. Conclusions: Our conclusions is to request funding from you in form of money, P3-469
IMPACT OF DECLINE ON OLDER CARERS OF ADULTS WITH DOWN SYNDROME AFFECTED BY DEMENTIA
Matthew Janicki, University of Illinois at Chicago, Chicago, IL, USA. Contact e-mail: [email protected] Background: A convenience sample of older carers of aging adults with Down syndrome (DS) in the United States were studied to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. Methods: Examined were the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, what the key health factors associated with carers faced with a changed level of care. Results: The study found that these elders were long-term, committed carers who decided early in their lives to look after their relative with DS over their lifetime. When faced with the onset and ongoing progression of dementia, their commitment was still evident as evidenced by adopting physical accommodations and finding ways to continue to provide care at home, while also seeking help from outside sources. Most saw a family or group home environment as the place of choice for their relative with DS when they can no longer offer care. The study did not observe any burn-out or significant health related problems associated with their continued caregiving save for their concerns about day-to-day strain and uncertainty about what will happen in the future. Conclusions: Information was gained on points for intervention and organizational planning for long-term provision of psychiatric and social supports to persons in these caregiving situations.
P3-470
T659 RELATIONSHIP BETWEEN CAREGIVER DISTRESS AND FALLS IN ELDERLY SUBJECTS WITH DEMENTIA
Silvia Leonardi, Sara Ercolani, Elena Mariani, Dario Maggio, Patrizia Mecocci, Geriatric and Gerontology, University of Perugia, Perugia, Italy. Contact e-mail: [email protected] Background: Elderly demented patients have a higher risk of osteoporotic fractures as compared to cognitively intact elderly subjects. This risk may be related to several factors (lower BMD, higher prevalence of falls and more severe motor disability; in particular mobility is often dependent on caregivers). The purpose of this study was to investigate whether emotional and psychological distress of the caregivers predicts falls and subsequent fractures in the elderly subjects demented. Methods: We studied a consecutive series of 106 demented subjects a who came to Department of Gerontology and Geriatrics of University of Perugia in the first six months of 2005 with their current caregiver. Each patient was assessed with the Geriatric Multidimensional evaluation. Each caregiver was evaluated with the Caregiver Burden Inventory (CBI), the Brief Symptom InventoryAnxiety (BSI-A) and the Brief Symptom Inventory-Depression (BSI-D) scales. After 12 months all caregivers were contacted by phone and answered to questions on mobility, falls and fractures of patients during the year. Results: The main characteristics of the studied population were: gender 60.7% women, age 78.8⫾6.3; ADL 4.8⫾1.4, IADL 3.2⫾2; MMSE 20.7⫾5.2; CDR 1.5⫾0.8; comorbidity (number of diseases 4.7⫾2.5, CIRS index of severity 1.4⫾0.3); number of drugs 3.0⫾1.7. Caregivers were mainly son or daughter (51%) or spouse (27.6%), aged 55.8⫾13, CBI 23.4⫾17.0 , BSI-A 7.0⫾6, BSI-D 4.5 ⫾ 4.4. After twelve months from baseline, caregivers referred almost one fall in 54 subjects with dementia, with 18 documented fractures. Fallers were older than not fallers, with a more severe dementia and major comorbidity, had lower education, taken more neuroleptics and sedatives (p⬍0.05). CBI score of caregivers of fallers was significantly higher than CBI score of caregivers of not fallers. Risk of fractures was significantly associated to anemia at baseline and to outdoor falls (p⬍0.05). Risk of falls after twelve months was associated to CBI score (OR 1.071 IC95% 1.029-1.114), to BSI-A score (OR 1.218 IC95% 1.087-1.365) and to BSI-D score (OR 1.28 IC95% 1.086-1.514), adjusted for age, gender and dementia severity. Conclusions: In elderly with dementia living in community, falls are associated with emotional and psychological distress of their caregivers. P3-471
FACTORS ASSOCIATED WITH CAREGIVER BURDEN FOR DEMENTIA PATIENTS
Miao Yu Liao1, Chang Bor Hor1, Kwoting Fang2, 1Taiching Hospital, Department of Health, Taichung City, Taiwan; 2National Yunlin University of Science & Technology, Yunlin, Taiwan. Contact e-mail: [email protected] Background: With the year of an aged society and the increase number of dementia patients in Taiwan, taking care of elders, especially dementia patients, has gaining more intensive discussion of social problem community. Taking care of dementia patients is more difficult than other chronic patients. However, there are about 91.5% of patients were cared by their family members and only 5% of them were cared in nursing homes in Taiwan. Their family members suffer from variety stresses. The main purpose of this study is two fold. First, from the practical standpoint, it measured the factors influence to caregiver burden for the dementia family members. Second, it tried to understand the gap between the demand of a variety of supports when take care of dementia patients and their satisfaction with these supports. Methods: Convenient samples were collected, lasted for three months, in Dementia Nursing home in the Taichung hospital Department of Health, Executive Yuan, ROC since Mar 2006. Face to face interview, along with a close-end caregiver burden, and demand and satisfaction with supports questionnaire, were conducted with Dementia family members. Factor analysis and Pearson Production Moment analysis were adopted to analyze the reliability of factors and cor-
THE NATURE OF THE DISEASES THE AGED ARE FACING IN UGANDA
N
Mwambu Margaret Jane Jane, Nkumba University, Kampala, Uganda. Contact e-mail: [email protected]
W
IT
H
D
R
AW
Background: I was born by mr and mrs Mukata, in a village called Kamonkoli, Buduka distract. l started with my education in 60s in Kamonkoli primary school, then l joined Namengo Girls, then after l joined Kisiki college Namutumba for my secondary eduction, then l joined Nkumba , then after l joined Kampala international universty. I started an NGO for the aged in 2005, its a christian organization, caring for the aged, widows, orphans and people living with H.I.V/Aids, l started with 50 members, in 2005 but right now our organization is caring for over 200 members and above. Methods: Our methods, that we use is to make sure that we care for the aged, by giving them food, clothings, educating orphans by providing them with school fees, food, clothigs etc and caring for the widows, people living with H.I.V/Aids, we provide the above to them. but since we are in a third world we can not afford to care for all the members , so on that issue we request you kindly to fund our organization. Results: Results they reduce pressure for the above, by not getting sick etc. Conclusions: Our conclusions is to request funding from you in form of money, P3-469
IMPACT OF DECLINE ON OLDER CARERS OF ADULTS WITH DOWN SYNDROME AFFECTED BY DEMENTIA
Matthew Janicki, University of Illinois at Chicago, Chicago, IL, USA. Contact e-mail: [email protected] Background: A convenience sample of older carers of aging adults with Down syndrome (DS) in the United States were studied to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. Methods: Examined were the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, what the key health factors associated with carers faced with a changed level of care. Results: The study found that these elders were long-term, committed carers who decided early in their lives to look after their relative with DS over their lifetime. When faced with the onset and ongoing progression of dementia, their commitment was still evident as evidenced by adopting physical accommodations and finding ways to continue to provide care at home, while also seeking help from outside sources. Most saw a family or group home environment as the place of choice for their relative with DS when they can no longer offer care. The study did not observe any burn-out or significant health related problems associated with their continued caregiving save for their concerns about day-to-day strain and uncertainty about what will happen in the future. Conclusions: Information was gained on points for intervention and organizational planning for long-term provision of psychiatric and social supports to persons in these caregiving situations.
P3-470
T659 RELATIONSHIP BETWEEN CAREGIVER DISTRESS AND FALLS IN ELDERLY SUBJECTS WITH DEMENTIA
Silvia Leonardi, Sara Ercolani, Elena Mariani, Dario Maggio, Patrizia Mecocci, Geriatric and Gerontology, University of Perugia, Perugia, Italy. Contact e-mail: [email protected] Background: Elderly demented patients have a higher risk of osteoporotic fractures as compared to cognitively intact elderly subjects. This risk may be related to several factors (lower BMD, higher prevalence of falls and more severe motor disability; in particular mobility is often dependent on caregivers). The purpose of this study was to investigate whether emotional and psychological distress of the caregivers predicts falls and subsequent fractures in the elderly subjects demented. Methods: We studied a consecutive series of 106 demented subjects a who came to Department of Gerontology and Geriatrics of University of Perugia in the first six months of 2005 with their current caregiver. Each patient was assessed with the Geriatric Multidimensional evaluation. Each caregiver was evaluated with the Caregiver Burden Inventory (CBI), the Brief Symptom InventoryAnxiety (BSI-A) and the Brief Symptom Inventory-Depression (BSI-D) scales. After 12 months all caregivers were contacted by phone and answered to questions on mobility, falls and fractures of patients during the year. Results: The main characteristics of the studied population were: gender 60.7% women, age 78.8⫾6.3; ADL 4.8⫾1.4, IADL 3.2⫾2; MMSE 20.7⫾5.2; CDR 1.5⫾0.8; comorbidity (number of diseases 4.7⫾2.5, CIRS index of severity 1.4⫾0.3); number of drugs 3.0⫾1.7. Caregivers were mainly son or daughter (51%) or spouse (27.6%), aged 55.8⫾13, CBI 23.4⫾17.0 , BSI-A 7.0⫾6, BSI-D 4.5 ⫾ 4.4. After twelve months from baseline, caregivers referred almost one fall in 54 subjects with dementia, with 18 documented fractures. Fallers were older than not fallers, with a more severe dementia and major comorbidity, had lower education, taken more neuroleptics and sedatives (p⬍0.05). CBI score of caregivers of fallers was significantly higher than CBI score of caregivers of not fallers. Risk of fractures was significantly associated to anemia at baseline and to outdoor falls (p⬍0.05). Risk of falls after twelve months was associated to CBI score (OR 1.071 IC95% 1.029-1.114), to BSI-A score (OR 1.218 IC95% 1.087-1.365) and to BSI-D score (OR 1.28 IC95% 1.086-1.514), adjusted for age, gender and dementia severity. Conclusions: In elderly with dementia living in community, falls are associated with emotional and psychological distress of their caregivers. P3-471
FACTORS ASSOCIATED WITH CAREGIVER BURDEN FOR DEMENTIA PATIENTS
Miao Yu Liao1, Chang Bor Hor1, Kwoting Fang2, 1Taiching Hospital, Department of Health, Taichung City, Taiwan; 2National Yunlin University of Science & Technology, Yunlin, Taiwan. Contact e-mail: [email protected] Background: With the year of an aged society and the increase number of dementia patients in Taiwan, taking care of elders, especially dementia patients, has gaining more intensive discussion of social problem community. Taking care of dementia patients is more difficult than other chronic patients. However, there are about 91.5% of patients were cared by their family members and only 5% of them were cared in nursing homes in Taiwan. Their family members suffer from variety stresses. The main purpose of this study is two fold. First, from the practical standpoint, it measured the factors influence to caregiver burden for the dementia family members. Second, it tried to understand the gap between the demand of a variety of supports when take care of dementia patients and their satisfaction with these supports. Methods: Convenient samples were collected, lasted for three months, in Dementia Nursing home in the Taichung hospital Department of Health, Executive Yuan, ROC since Mar 2006. Face to face interview, along with a close-end caregiver burden, and demand and satisfaction with supports questionnaire, were conducted with Dementia family members. Factor analysis and Pearson Production Moment analysis were adopted to analyze the reliability of factors and cor-