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106 Determination of Effects of Perceived Social Support Level on the Chemotherapy Symptoms for the Women With Gynaecologic Cancer
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Poster Presentations / European Journal of Oncology Nursing 16S1 (2012) S21–S46
communication difficulties on nurses. The themes were decreasing motivation, burnout, and feelings of inability, restlessness and deficiency. The last main category was related to suggestions for the empowerment for the communication difficulties with two themes related to institution and legal issues. Conclusion: Nurses need to be supported in communication and helping skills especially talking about death and dying and coping with the emotional stress. 105 A Clinical Audit on the Patients’ Experience of a Phase I Trial in a Clinical Trials Unit S. Stapleton1 , J. Hanwell1 , M. Woolven1 . 1 Royal Marsden Hospital, Drug Development Unit, London, United Kingdom Introduction: The Drug Development Unit (DDU) at the Royal Marsden Hospital runs phase I trials for patients with advanced solid tumours. The trials are complex; all vary in drug mechanism, dose scheduling and visit schedule for safety and research assessments. Phase I trials are considered to be a risk for the patients with little chance of benefit in terms of disease response. The patient in a trial makes a commitment in terms of time, potential side effects and possible effects on quality of life. The DDU has had a threefold increase in patient activity levels, the complexity of trial assessments has also increased with many patients having greater expectations placed on them. In light of this a clinical audit was performed with a focus on information giving, waiting time, patient support and referral to external services to investigate the experience of the patient being cared for on the DDU. Methods and Discussion: A respective audit using a customdesigned patient experience questionnaire was performed to achieve a sample size of 30 patients on Phase I trials at the DDU. Questionnaires were given to patients having at least one cycle of treatment. In total 40 questionnaires were given out and a total of 31 completed questionnaires were received and analysed (a 77.5% response rate). Questions focused on the following areas: • Ease of understanding of verbal and written information at initial and follow up consultations • Clinic environment – issues surrounding privacy and dignity • Patient support • Referral to community palliative care teams Results and Discussion: High levels of satisfaction were found in the information section with patients feeling benefit from the initial consultation procedure, which includes nursing input. Some issues arose surrounding difficult consultations in busy areas where there was a lack of privacy. Patient support was found to be good with the intervention of the clinical nurse specialist, however surprising results showed that only 35% of patients felt that they had been offered referral to palliative care support, even though a systematic process was in place for discussing this with patients. Conclusion: The audit gave an interesting insight into the aspects of the service that we could change if needed. Action plans were formulated with the whole team during discussion. Four issues were identified as not meeting acceptable levels of positive feedback from the patient’s point of view as follows: • Information about the amount of time to be spent at the hospital for DDU appointments. • Time between agreeing and starting a trial being too long. • Privacy and space for discussions with clinical staff. • Discussion of / referrals to palliative care. The audit will be revisited when all changes are implemented.
106 Determination of Effects of Perceived Social Support Level on the Chemotherapy Symptoms for the Women With Gynaecologic Cancer S. Yilmaz1 , G. Vural2 . 1 Dr. Abdurrahman Yurtaslan Oncology Education and Research Hospital, Gynecology, Ankara, Turkey; 2 Gazi University, Faculty of Health Sciences, Ankara, Turkey Aim: Gynaecologic cancer is frequently seen in women. Chemotherapy provide long life chance to patient’s but it has a lot of side effects. These side effects have negative impact on patient’s life quality, psychology and sexuality. Patients can cope more easily with cancer and treatment of cancer with social support is provided by family, friends or health care personnel. This study was done for determining the effect of social support on chemotherapy symptoms. Materials and Methods: Research was done on patient’s who applied for the out-patient chemotherapy centre of Dr. Zekai Tahir Burak Women’s Health and Dr. Abdurrahman Yurtaslan Oncology Education and Research Hospitals. Data were collected by using a questionnaire form developed by the researcher, chemotherapy symptom assessment scale and multidimensional scale of perceived social support. 148 patients to meet the criteria of study (fourth chemotherapy cure and over, undergone surgical procedure, nonmetastatic, without communication problem and 18 years old and older and women who volunteered to participate to) composed of sample the research. MS-Excel 2003, SPSS for Win. programs for all statistical analysis and calculations were used. Results: Multidimensional scale of perceived social support midrange points was found as 49.0. It has been determined that, age of the patient, marrial status, individuals that close patient, place patient living in and precautions taken against side effects influence of the social support (p < 0.05). More common chemotherapy symptoms were ‘weakness’ and ‘heavy tiredness’ with average point of 4.8±1.3. While educational status of the patient, individuals close patient, diagnosis, having information about the chemotherapy and its side effects, having problems related to the chemotherapy taken previously have relationship with some symptoms of the chemotherapy symptom assessment scale (p < 0.05), they are not effecting the existence status of some symptoms (p > 0.05). It has been determined that there is a relationship between multidimensional scale of perceived social support and symptom of problems with skin and nails, mouth and throat, weight, insomnia, feeling worried and nervous, feeling pessimistic and upset (p < 0.05). Conclusion: It has been determined that there is a relationship between multidimensional scale of perceived social support and symptom of problems with skin and nails, mouth and throat, weight, insomnia, feeling worried and nervous, feeling pessimistic and upset. But it has been determined that there is not a relationship between multidimensional scale of perceived social support and symptom of problems with constipation, diarrhea and pain. 107 Patients’ Self Report and Their Spouses’ Perception of Quality of Life in Patients With Breast Cancer ¨ Usta Yesilbalkan1 , D. Geresinli2 , A. Karadakovan1 . 1 Ege University O. Faculty of Nursing, Internal Medicine Department, Izmir, Turkey; 2 Dokuz Eyl¨ ul University, Internal Medicine Depatment, Izmir, Turkey Purpose: The study’s aim was to compare patients’ and their spouses’ perceptions of quality of life in patients with breast cancer. Method: The study used a cross-sectional design. A convenience sample of 66 dyads, composed of patients and their spouses, completed the Nightingale Symptom Assessment Scale (N-SAS) in an out-patient chemotherapy unit. This scale is a 38-item Likert-type scale assessing physical, social and psychological area of quality of life in patients. Descriptive statistics were used to analyse demographic variables within tha sample whilst paired-sample
Poster Presentations / European Journal of Oncology Nursing 16S1 (2012) S21–S46
communication difficulties on nurses. The themes were decreasing motivation, burnout, and feelings of inability, restlessness and deficiency. The last main category was related to suggestions for the empowerment for the communication difficulties with two themes related to institution and legal issues. Conclusion: Nurses need to be supported in communication and helping skills especially talking about death and dying and coping with the emotional stress. 105 A Clinical Audit on the Patients’ Experience of a Phase I Trial in a Clinical Trials Unit S. Stapleton1 , J. Hanwell1 , M. Woolven1 . 1 Royal Marsden Hospital, Drug Development Unit, London, United Kingdom Introduction: The Drug Development Unit (DDU) at the Royal Marsden Hospital runs phase I trials for patients with advanced solid tumours. The trials are complex; all vary in drug mechanism, dose scheduling and visit schedule for safety and research assessments. Phase I trials are considered to be a risk for the patients with little chance of benefit in terms of disease response. The patient in a trial makes a commitment in terms of time, potential side effects and possible effects on quality of life. The DDU has had a threefold increase in patient activity levels, the complexity of trial assessments has also increased with many patients having greater expectations placed on them. In light of this a clinical audit was performed with a focus on information giving, waiting time, patient support and referral to external services to investigate the experience of the patient being cared for on the DDU. Methods and Discussion: A respective audit using a customdesigned patient experience questionnaire was performed to achieve a sample size of 30 patients on Phase I trials at the DDU. Questionnaires were given to patients having at least one cycle of treatment. In total 40 questionnaires were given out and a total of 31 completed questionnaires were received and analysed (a 77.5% response rate). Questions focused on the following areas: • Ease of understanding of verbal and written information at initial and follow up consultations • Clinic environment – issues surrounding privacy and dignity • Patient support • Referral to community palliative care teams Results and Discussion: High levels of satisfaction were found in the information section with patients feeling benefit from the initial consultation procedure, which includes nursing input. Some issues arose surrounding difficult consultations in busy areas where there was a lack of privacy. Patient support was found to be good with the intervention of the clinical nurse specialist, however surprising results showed that only 35% of patients felt that they had been offered referral to palliative care support, even though a systematic process was in place for discussing this with patients. Conclusion: The audit gave an interesting insight into the aspects of the service that we could change if needed. Action plans were formulated with the whole team during discussion. Four issues were identified as not meeting acceptable levels of positive feedback from the patient’s point of view as follows: • Information about the amount of time to be spent at the hospital for DDU appointments. • Time between agreeing and starting a trial being too long. • Privacy and space for discussions with clinical staff. • Discussion of / referrals to palliative care. The audit will be revisited when all changes are implemented.
106 Determination of Effects of Perceived Social Support Level on the Chemotherapy Symptoms for the Women With Gynaecologic Cancer S. Yilmaz1 , G. Vural2 . 1 Dr. Abdurrahman Yurtaslan Oncology Education and Research Hospital, Gynecology, Ankara, Turkey; 2 Gazi University, Faculty of Health Sciences, Ankara, Turkey Aim: Gynaecologic cancer is frequently seen in women. Chemotherapy provide long life chance to patient’s but it has a lot of side effects. These side effects have negative impact on patient’s life quality, psychology and sexuality. Patients can cope more easily with cancer and treatment of cancer with social support is provided by family, friends or health care personnel. This study was done for determining the effect of social support on chemotherapy symptoms. Materials and Methods: Research was done on patient’s who applied for the out-patient chemotherapy centre of Dr. Zekai Tahir Burak Women’s Health and Dr. Abdurrahman Yurtaslan Oncology Education and Research Hospitals. Data were collected by using a questionnaire form developed by the researcher, chemotherapy symptom assessment scale and multidimensional scale of perceived social support. 148 patients to meet the criteria of study (fourth chemotherapy cure and over, undergone surgical procedure, nonmetastatic, without communication problem and 18 years old and older and women who volunteered to participate to) composed of sample the research. MS-Excel 2003, SPSS for Win. programs for all statistical analysis and calculations were used. Results: Multidimensional scale of perceived social support midrange points was found as 49.0. It has been determined that, age of the patient, marrial status, individuals that close patient, place patient living in and precautions taken against side effects influence of the social support (p < 0.05). More common chemotherapy symptoms were ‘weakness’ and ‘heavy tiredness’ with average point of 4.8±1.3. While educational status of the patient, individuals close patient, diagnosis, having information about the chemotherapy and its side effects, having problems related to the chemotherapy taken previously have relationship with some symptoms of the chemotherapy symptom assessment scale (p < 0.05), they are not effecting the existence status of some symptoms (p > 0.05). It has been determined that there is a relationship between multidimensional scale of perceived social support and symptom of problems with skin and nails, mouth and throat, weight, insomnia, feeling worried and nervous, feeling pessimistic and upset (p < 0.05). Conclusion: It has been determined that there is a relationship between multidimensional scale of perceived social support and symptom of problems with skin and nails, mouth and throat, weight, insomnia, feeling worried and nervous, feeling pessimistic and upset. But it has been determined that there is not a relationship between multidimensional scale of perceived social support and symptom of problems with constipation, diarrhea and pain. 107 Patients’ Self Report and Their Spouses’ Perception of Quality of Life in Patients With Breast Cancer ¨ Usta Yesilbalkan1 , D. Geresinli2 , A. Karadakovan1 . 1 Ege University O. Faculty of Nursing, Internal Medicine Department, Izmir, Turkey; 2 Dokuz Eyl¨ ul University, Internal Medicine Depatment, Izmir, Turkey Purpose: The study’s aim was to compare patients’ and their spouses’ perceptions of quality of life in patients with breast cancer. Method: The study used a cross-sectional design. A convenience sample of 66 dyads, composed of patients and their spouses, completed the Nightingale Symptom Assessment Scale (N-SAS) in an out-patient chemotherapy unit. This scale is a 38-item Likert-type scale assessing physical, social and psychological area of quality of life in patients. Descriptive statistics were used to analyse demographic variables within tha sample whilst paired-sample