- Email: [email protected]
Achieving success in school and childhood cancer
Proceedings
of 18th Annual
the research efforts to understand the efficacy of alternative or complementary therapies.
Case Management in Pediatric Oncology Nina Keller, RN, MSN, Head Nurse, Pediatrics, and Nancy Shendel Falik, RN, MA, Assistant Vice President, Nursing, Robert Wood Johnson University Hospital, New Brunswick, NJ. Nursing administrators and staff are continually challenged to deliver effective and efficient nursing care in an increasingly complex and changing environment. Diminishing financial and human resources and increased intensity require innovative approaches to patient care delivery. To meet the challenges, an alternative practice model was implemented in the Children’s Center at Robert Wood Johnson University Hospital in 1992. The model provides high quality, cost-effective care, and creates rewarding roles for nurses and other personnel delivering and supporting oncology care to children and their families. This presentation included the requirements for a new practice model, key distinguishing features of ProACT, objectives of a service-based case management system, role and scope of the case manager, and institutional impact of the ProACT model and case manager role.
Late Effects Follow-up, Keep Going Wendie
L. Hobbie, RN, MSN, 132 Woolf
Lane, Ithaca, NY 14850. Follow-up clinics have been established since the early 1980s in an attempt to meet the unique needs of long-term survivors of childhood cancer. During the past 12 years, many clinics have been established to meet the population needs, but somehow fall short of this goal. At this time, there are approximately 29 clinics that are functioning in cancer centers across the country. In reviewing the organizational structure and approach to patients, certain commonalities were noted in successful clinics. Two of the most important aspects were consistent team members, and a nursing coordinator whose focus is the care of long-term survivors. When the nurse
Conference
161
practitioner’s role is split between acute and long-term responsibilities, these acute responsibilities often supersede the needs of the followup clinic, thereby losing some of the necessary ingredients in this specialty clinic. Some of the key components to maintaining these clinics may include continued patient accrual, ongoing contact with current survivors, maintaining a high level of interest in the clinic, and screening research projects as to not tax the surviving population.
Achieving Success in School and Childhood Cancer Julia Challinor, RN, MSN, MEd, Educational Liaison, Division of Pediatric Oncology, University of California San Francisco, San Francisco, CA. A Pediatric Oncology Educational Liaison program was established at a large tertiary care medical center in northern California to assist children on and off therapy who are experiencing school problems. The importance of school attendance during therapy is emphasized by medical teams as a normalizing experience for the children. However, children treated for cancer are at risk for school problems related to their treatment, including central nervous system therapy, radiation, and prolonged school absences.’ Neuropsychological changes in standardized testing have demonstrated the deleterious effects of cancer treatment in some long term survivors.2 The Educational Liaison program at University of California San Francisco is primarily focused on school re-entry, special education assessment, the education of school personnel, and providing advocacyfor the children currently on treatment and those who are off therapy. Discussion included how the program started, specific interventions with families and children, and educational materials that have been developed for the classroom and teacher presentations.
References 1. Copeland DR: effects of childhood
Neuropsychological and leukemia and its treatment.
J Clins
1992
42283-295,
psychosocial CA Cancer
Proceedings
162
2. Peckham hood
cancer.
VC: Educational Pediatrician
deficits
I&25-31,
in survivors
of 18th Annual
of child-
1991
Closing Address: The Power of Music and Medicine Deforia Lane, PhD, MT-BC, Director of Music Therapy Program, University Hospitals of Cleveland, Cleveland, OH. I. Definition of Music Therapy A. Educational requirements B. Population served II. Personal Perspective A. Cancer diagnosis and response B. Music therapy and cancer support groups C. A proposal for music and health
Conference
Ill. Professional perspective A. Initiating a music therapy program with adults and pediatric oncology patients B. Objectives, goals, and procedures C. Materials and resources N. What can you do? A. Practical ideas for nurses B. Song and lyric writing C. Reducing pain perception D. Celebrating with family members E. Musicians in residence Dr Lane is director pitals of Cleveland, and Children’s certified music cology Nursing rial Lectureship.
of music therapy at the University HosIreland Cancer Center/Rainbow Babies
Hospital therapist.
in Cleveland, OH. She Dr Lane is the recipient
is a boardof the On-
Society’s Mara Morgensen Flaherty This honor is given in recognition
Memoof a
health care provider who has made a significant contribution to psychosocial aspects of care for patients with cancer.
Research Abstracts Session Childrens’ and Mothers’ Adjustment Responses to Cancer: Health Promotion Jean Burley Moore, RN, PhD, Associate Professor, College of Nursing and Health Science, George Mason University, Fairfax, VA; and Revonda B. Moser, RN, MSN, CPNP, Clinical Specialist, Children’s National Medical Center, Washington, DC. The objective of this preliminary, ongoing research was to examine the health promotion activities of and for children by two groups: (1) children who have been diagnosed with cancer and, (2) the mothers of these children. There were several purposes of this study: (1) compare the health promotion of children who were currently receiving therapy for cancer (on therapy) with children who had completed cancer therapy (off therapy); (2) determine the relationship between childrens’ and mothers’ health promotion; and (3) determine if demographic variables, such as present age of the child, age at
diagnosis, ethnic group, gender, length of time since initial diagnosis, socioeconomic status, or therapy status (on-off) were related to children’s health promotion. It was hypothesized that (1) there was a difference between the health promotion activities of children and their mothers in the on-therapy and off-therapy groups; and (2) that childrens’ and mothers’ health promotion activities would be related. Orem’s Self-Care Deficit Nursing Theory was the theoretical framework used in this study. A quasi-experimental design was used for comparison of the two groups of children. Additionally, a correlational design was used for examination of relationships among variables and determination of relationships. The subjects of this study were a nonprobability sample of 60 children, ages 9 to 18 years, who had been diagnosed with cancer, and their mothers. Approximately half of the children were receiving treatment and half were receiving long-term follow-up care. Data collection: Study participants
of 18th Annual
the research efforts to understand the efficacy of alternative or complementary therapies.
Case Management in Pediatric Oncology Nina Keller, RN, MSN, Head Nurse, Pediatrics, and Nancy Shendel Falik, RN, MA, Assistant Vice President, Nursing, Robert Wood Johnson University Hospital, New Brunswick, NJ. Nursing administrators and staff are continually challenged to deliver effective and efficient nursing care in an increasingly complex and changing environment. Diminishing financial and human resources and increased intensity require innovative approaches to patient care delivery. To meet the challenges, an alternative practice model was implemented in the Children’s Center at Robert Wood Johnson University Hospital in 1992. The model provides high quality, cost-effective care, and creates rewarding roles for nurses and other personnel delivering and supporting oncology care to children and their families. This presentation included the requirements for a new practice model, key distinguishing features of ProACT, objectives of a service-based case management system, role and scope of the case manager, and institutional impact of the ProACT model and case manager role.
Late Effects Follow-up, Keep Going Wendie
L. Hobbie, RN, MSN, 132 Woolf
Lane, Ithaca, NY 14850. Follow-up clinics have been established since the early 1980s in an attempt to meet the unique needs of long-term survivors of childhood cancer. During the past 12 years, many clinics have been established to meet the population needs, but somehow fall short of this goal. At this time, there are approximately 29 clinics that are functioning in cancer centers across the country. In reviewing the organizational structure and approach to patients, certain commonalities were noted in successful clinics. Two of the most important aspects were consistent team members, and a nursing coordinator whose focus is the care of long-term survivors. When the nurse
Conference
161
practitioner’s role is split between acute and long-term responsibilities, these acute responsibilities often supersede the needs of the followup clinic, thereby losing some of the necessary ingredients in this specialty clinic. Some of the key components to maintaining these clinics may include continued patient accrual, ongoing contact with current survivors, maintaining a high level of interest in the clinic, and screening research projects as to not tax the surviving population.
Achieving Success in School and Childhood Cancer Julia Challinor, RN, MSN, MEd, Educational Liaison, Division of Pediatric Oncology, University of California San Francisco, San Francisco, CA. A Pediatric Oncology Educational Liaison program was established at a large tertiary care medical center in northern California to assist children on and off therapy who are experiencing school problems. The importance of school attendance during therapy is emphasized by medical teams as a normalizing experience for the children. However, children treated for cancer are at risk for school problems related to their treatment, including central nervous system therapy, radiation, and prolonged school absences.’ Neuropsychological changes in standardized testing have demonstrated the deleterious effects of cancer treatment in some long term survivors.2 The Educational Liaison program at University of California San Francisco is primarily focused on school re-entry, special education assessment, the education of school personnel, and providing advocacyfor the children currently on treatment and those who are off therapy. Discussion included how the program started, specific interventions with families and children, and educational materials that have been developed for the classroom and teacher presentations.
References 1. Copeland DR: effects of childhood
Neuropsychological and leukemia and its treatment.
J Clins
1992
42283-295,
psychosocial CA Cancer
Proceedings
162
2. Peckham hood
cancer.
VC: Educational Pediatrician
deficits
I&25-31,
in survivors
of 18th Annual
of child-
1991
Closing Address: The Power of Music and Medicine Deforia Lane, PhD, MT-BC, Director of Music Therapy Program, University Hospitals of Cleveland, Cleveland, OH. I. Definition of Music Therapy A. Educational requirements B. Population served II. Personal Perspective A. Cancer diagnosis and response B. Music therapy and cancer support groups C. A proposal for music and health
Conference
Ill. Professional perspective A. Initiating a music therapy program with adults and pediatric oncology patients B. Objectives, goals, and procedures C. Materials and resources N. What can you do? A. Practical ideas for nurses B. Song and lyric writing C. Reducing pain perception D. Celebrating with family members E. Musicians in residence Dr Lane is director pitals of Cleveland, and Children’s certified music cology Nursing rial Lectureship.
of music therapy at the University HosIreland Cancer Center/Rainbow Babies
Hospital therapist.
in Cleveland, OH. She Dr Lane is the recipient
is a boardof the On-
Society’s Mara Morgensen Flaherty This honor is given in recognition
Memoof a
health care provider who has made a significant contribution to psychosocial aspects of care for patients with cancer.
Research Abstracts Session Childrens’ and Mothers’ Adjustment Responses to Cancer: Health Promotion Jean Burley Moore, RN, PhD, Associate Professor, College of Nursing and Health Science, George Mason University, Fairfax, VA; and Revonda B. Moser, RN, MSN, CPNP, Clinical Specialist, Children’s National Medical Center, Washington, DC. The objective of this preliminary, ongoing research was to examine the health promotion activities of and for children by two groups: (1) children who have been diagnosed with cancer and, (2) the mothers of these children. There were several purposes of this study: (1) compare the health promotion of children who were currently receiving therapy for cancer (on therapy) with children who had completed cancer therapy (off therapy); (2) determine the relationship between childrens’ and mothers’ health promotion; and (3) determine if demographic variables, such as present age of the child, age at
diagnosis, ethnic group, gender, length of time since initial diagnosis, socioeconomic status, or therapy status (on-off) were related to children’s health promotion. It was hypothesized that (1) there was a difference between the health promotion activities of children and their mothers in the on-therapy and off-therapy groups; and (2) that childrens’ and mothers’ health promotion activities would be related. Orem’s Self-Care Deficit Nursing Theory was the theoretical framework used in this study. A quasi-experimental design was used for comparison of the two groups of children. Additionally, a correlational design was used for examination of relationships among variables and determination of relationships. The subjects of this study were a nonprobability sample of 60 children, ages 9 to 18 years, who had been diagnosed with cancer, and their mothers. Approximately half of the children were receiving treatment and half were receiving long-term follow-up care. Data collection: Study participants