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Schedule with Abstracts
mortality rates are 3-10 times higher in patients with ASDs than the general population. With the increasing prevalence of autism, palliative care teams are likely to care for patients with ASDs and a comorbid serious illness. Because children with autism have profound limitations in communication and social reciprocity, their experiences with medical care are unique and can be challenging. Providing a thorough palliative care assessment and delivering needed services is often an immense undertaking that can be quite stressful for all involved in care. The healthcare experience for all three stakeholdersdpatient, family, and medical providersdpresents unique challenges; however, positive results can be obtained with advanced planning. The session will also discuss strategies for providing effective communication and care for children with autism who have a family member with a serious illness. This session will provide concrete strategies that can enhance care provided to patients with ASDs and a comorbid serious illness and their families. By recognizing and addressing the particular needs of patients with ASDs, palliative care providers can develop trusting and productive relationships with patients and families that can allow for delivery of optimal palliative care. Participants in this session will learn how to develop an interdisciplinary care plan that will optimize the healthcare experience for all involved in the care of patients with autism and their families in the face of serious illness.
Poetry and Pain Management: The Art of Deeply Listening to Patients (FR474) Judith Redwing Keyssar, BA RN, Jewish Family and Children’s Services, San Francisco, CA. Michael Rabow, MD FAAHPM, University of California San Francisco, San Francisco, CA. Merijane Block, BA, University of California San Francisco, San Francisco, CA. Objectives Create a plan of care for appropriate patients that include using poetry or creative writing as a healing modality. Identify two methods of improving communication/listening skills with patients. We have the cognitive understanding that palliative care is patient-centered and addresses the whole person: body, mind, heart, spirit. Yet, truly addressing the deeper issues of psychological and spiritual distress in our patients is challenging. It may be helpful to develop strategies to think ‘‘outside of the box’’ and facilitate the creative process to guide our patients and ourselves. For some people, creating visual art or making music is, in itself, a necessary part of the
Vol. 51 No. 2 February 2016
healing process. For others, creative writing (including poetry) can help express the metaphors of intense suffering. Listening to poetry can be a salve to the spirit, soothing wounds that morphine or ativan cannot heal. In this 1-hour session, we will share stories of clinicians and patients using the power of poetry as a healing modality, as well as conduct several experiential exercises to help clinicians access the voice of their own ‘‘inner healer.’’ In the words of John Fox, Director of the Institute for Poetic Medicine, ‘‘When someone deeply listens to you, your bare feet are on the earth, and a beloved land that seemed distant, is now at home within you.’’
Building a Feedback Culture: How to Teach Your Team to Give and Receive Feedback for Maximal Performance and Growth (FR475) Juliet Jacobsen, MD, Massachusetts General Hospital and Harvard University, Boston, MA. Vicki Jackson, MD MPH FAAHPM, Massachusetts General Hospital and Harvard Medical School, Boston, MA. Todd Rinehart, LICSW ACHP-SW, Massachusetts General Hospital, Boston, MA. Objectives Understand how an individual’s mindset about feedback affects how feedback is received. Explore how to receive feedback effectively as well as how to prepare others to optimally receive feedback. Reflect on ways to build a feedback culture in the work environment to promote team function, resilience, and retention. Feedback is essential for optimal performance and growth but many people lack training in how to give and receive feedback. Drawing from recent research, including work on positivity and mindset, this session will explore how an individual’s baseline thought habits and orientation to feedback influence how they are able to receive and utilize feedback. Participants will learn and practice evidence-based techniques for both giving and receiving feedback, and will learn how to optimally prepare others to receive feedback. Finally, participants will reflect on how to incorporate feedback into work culture to build an environment that promotes individual resilience and growth, team function, and staff retention.
Heart Problems, Easy Fixes: Practical Solutions for Overcoming Challenges in Conducting Palliative Care Research, Quality Improvement, and Clinical Practice in Heart Failure (FR476) Dio Kavalieratos, PhD, University of Pittsburgh, Pittsburgh, PA. David Bekelman, MD MPH, University of Colorado, Denver, CO. Marie Bakitas, DNSc CRNP AOCN ACHPN FAAN, University of Alabama at