- Email: [email protected]
Ehlers-Danlos Everywhere
Grant, L J (1985). ‘Interlace pressure measurement between a patient and a support surface‘, Care: science and Practice. 1, 1, 7-9. Grieve, E F M (1987). ‘The measurement of pressures used in simulated passiveeccessory oscillatocy mobilisationtechniques‘. Pnxwdings: loth lntembbnel Congress of the WorM Canfederation forphysical Thempy. Sydney, pages 182-1 84. Hardy, G Land Napier, J K (1991). ‘Inter and intratherapist reli ability of passive accessory movement technique’, New Zealand Jwmal of Physiotherapy,December, pages 22-24.
Herzog. W, Conway, P J, Kawchok, G N, Zhang, Y and Hasler, E M (1993). ‘Forces exerted during spinal manipulative therapy’, Sp&m,18,9,1206-12. JIM. G A (1988). ‘Monitoringaspects ofthe development of undergraduate student skills in manual techniques’, Proceedings: I ~ t k ~ t ~ l F & ~ a L h o l . Mai@ktiveTherepists, c3nwdW.Sep(embere? JuH, G and Gibson. K (1986). ‘Aspects of therapist reliability in mnualeuvninationof lumbar inteRegmentalmotion’, Arrslralian phvskehereprAspodetbnNebionel~Hobari. Kasra, M, Shirazi-Adl, A and Drouin, G (1992). ‘Dynamics of human lumbar intervertebral joints: Experimental and finite e&nentmvealgatbns’, Spme. 17,1,93-102.
Lee, R and Evans, J (1994). Towards a better understandingot spinal postero-anterior mobilisation’, Physbthewy, 80.2.68-73. Maher. C and Adams. R (1994). ‘Reliability of pain and stiffness assessments in clinical manual lumbar spine examination’, Physical Therapy,749,801-81 1. Maitland, G D (1986). Verfebral M8nipUl8tiOn (5th edn) Butterworth, London. Matyas. T A and Bach, T M (1985). ‘The reliability of selected techniques in clinical arthrometrics’, Australian Journal of Physiotherapy, 31,5.17!5-199. R i l e , D L (1992). ‘Measurement of accessory motion: Critical issues and relatedconcepts’, P h w / Therapy,72,12,33-41. Stoelwinder, E, Henderson. G. Zito, G, McCahey, P. Jull, 0 , Johnson. P, Trott, P and McCormick, G (1986). ‘The reliability of selected techniques in clinical arthrometrics’, Australian Journal of Physiotherapy,32.3.194-1 95. Wheatley, D C. Berme, N and Ferguson-Pell. M W (1982). ‘A low profile load transducer for monitoring movement during sleep’,Experimental Mechanics,20.19-21. Young, L (1986). ’The reliabilitywith which manual therapists detect changes in the behaviour of resistam using passive intervertebral movements’, AustmJian Journal of Physiotherapy, 32, 1.69.
Longer-term Psycho-social Support after Stroke MADAM - Iwrite in support of the This multidisciplinary group is an review stating that ‘the condition is paper by Sarah Tysoyc, qmphasising the importance of longer-term psyctrological and emotional rehabil-
itation after stroke (‘Stroke rehabilitation: What is the point?’ Ausrst 1995). Many studies have emphasised the poor long-term outcome for stroke patients and their families despite good physical recovery. One study found that 90%of patients were able to walk indoorsand dimb stain independently, but many of them were effectbiy housebound (Thomgren et al, 1990). It may be of interest that a number of research projects are currently under way investigating different ways of addressing the provision of bnger-temp s support for ~ patients after stroke. The different strategies adopted and the results from these projecir are to be disamed at the next meetingofthe Britkh Stroke Research Group In Nottingham on January 25. 1996.
informal forum where anyone interested in stroke and stroke research can meet and exchange ideas. Anyone interested in attending the meeting may contact me at the address below.
never or very rarely seen’ I believe that it may well have been seen but not diagnosed as Ehiers-Danlos syndrome; hence our desire to heighten awareness. Professor 6 Steinmann has written: ‘With increased medical awareness, Anne Forster PhD MCSP however, the presumed rarity seems Research physiotherapist Department of Health Care for the Eldedy likely to disappear. The aggregate frequency of EDS may be about St Luke’s hspital Bradford 1:5,000 births with no racial or ethnic 805 ONA predisposition. The syndrome has been encountered all over the world‘ Remwtoe (Steinman, 1993). Thomgren. M, Westling, Band Nonving, B Physiotherapistsare in the frontline (1gsO). ‘Outcome after stroke in patients discharged to independent ling’, Stroke, when it comes to recognisingthe lax 21,236-240. joints, soft, fragile skin and bruising associated with Ehlers-Danlos syndrome.
~
Ehlenr-Danlos Everywhere
Valerie Burrows
MADAM Iwas very interestedto read the review of our video on ‘Ehlers-Danlos Syndrome’ in the September edition of Physbhempy. Despite the final sentence of the
Founder Ehlers Danlos Support Group
-
ROfWWCS
Steinmann, B (1993). The Ehlers Oanlos Syndrome, Wiley-Liss, New York.
Herzog. W, Conway, P J, Kawchok, G N, Zhang, Y and Hasler, E M (1993). ‘Forces exerted during spinal manipulative therapy’, Sp&m,18,9,1206-12. JIM. G A (1988). ‘Monitoringaspects ofthe development of undergraduate student skills in manual techniques’, Proceedings: I ~ t k ~ t ~ l F & ~ a L h o l . Mai@ktiveTherepists, c3nwdW.Sep(embere? JuH, G and Gibson. K (1986). ‘Aspects of therapist reliability in mnualeuvninationof lumbar inteRegmentalmotion’, Arrslralian phvskehereprAspodetbnNebionel~Hobari. Kasra, M, Shirazi-Adl, A and Drouin, G (1992). ‘Dynamics of human lumbar intervertebral joints: Experimental and finite e&nentmvealgatbns’, Spme. 17,1,93-102.
Lee, R and Evans, J (1994). Towards a better understandingot spinal postero-anterior mobilisation’, Physbthewy, 80.2.68-73. Maher. C and Adams. R (1994). ‘Reliability of pain and stiffness assessments in clinical manual lumbar spine examination’, Physical Therapy,749,801-81 1. Maitland, G D (1986). Verfebral M8nipUl8tiOn (5th edn) Butterworth, London. Matyas. T A and Bach, T M (1985). ‘The reliability of selected techniques in clinical arthrometrics’, Australian Journal of Physiotherapy, 31,5.17!5-199. R i l e , D L (1992). ‘Measurement of accessory motion: Critical issues and relatedconcepts’, P h w / Therapy,72,12,33-41. Stoelwinder, E, Henderson. G. Zito, G, McCahey, P. Jull, 0 , Johnson. P, Trott, P and McCormick, G (1986). ‘The reliability of selected techniques in clinical arthrometrics’, Australian Journal of Physiotherapy,32.3.194-1 95. Wheatley, D C. Berme, N and Ferguson-Pell. M W (1982). ‘A low profile load transducer for monitoring movement during sleep’,Experimental Mechanics,20.19-21. Young, L (1986). ’The reliabilitywith which manual therapists detect changes in the behaviour of resistam using passive intervertebral movements’, AustmJian Journal of Physiotherapy, 32, 1.69.
Longer-term Psycho-social Support after Stroke MADAM - Iwrite in support of the This multidisciplinary group is an review stating that ‘the condition is paper by Sarah Tysoyc, qmphasising the importance of longer-term psyctrological and emotional rehabil-
itation after stroke (‘Stroke rehabilitation: What is the point?’ Ausrst 1995). Many studies have emphasised the poor long-term outcome for stroke patients and their families despite good physical recovery. One study found that 90%of patients were able to walk indoorsand dimb stain independently, but many of them were effectbiy housebound (Thomgren et al, 1990). It may be of interest that a number of research projects are currently under way investigating different ways of addressing the provision of bnger-temp s support for ~ patients after stroke. The different strategies adopted and the results from these projecir are to be disamed at the next meetingofthe Britkh Stroke Research Group In Nottingham on January 25. 1996.
informal forum where anyone interested in stroke and stroke research can meet and exchange ideas. Anyone interested in attending the meeting may contact me at the address below.
never or very rarely seen’ I believe that it may well have been seen but not diagnosed as Ehiers-Danlos syndrome; hence our desire to heighten awareness. Professor 6 Steinmann has written: ‘With increased medical awareness, Anne Forster PhD MCSP however, the presumed rarity seems Research physiotherapist Department of Health Care for the Eldedy likely to disappear. The aggregate frequency of EDS may be about St Luke’s hspital Bradford 1:5,000 births with no racial or ethnic 805 ONA predisposition. The syndrome has been encountered all over the world‘ Remwtoe (Steinman, 1993). Thomgren. M, Westling, Band Nonving, B Physiotherapistsare in the frontline (1gsO). ‘Outcome after stroke in patients discharged to independent ling’, Stroke, when it comes to recognisingthe lax 21,236-240. joints, soft, fragile skin and bruising associated with Ehlers-Danlos syndrome.
~
Ehlenr-Danlos Everywhere
Valerie Burrows
MADAM Iwas very interestedto read the review of our video on ‘Ehlers-Danlos Syndrome’ in the September edition of Physbhempy. Despite the final sentence of the
Founder Ehlers Danlos Support Group
-
ROfWWCS
Steinmann, B (1993). The Ehlers Oanlos Syndrome, Wiley-Liss, New York.