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EONS Young Researchers Award Lecture
ARTICLE IN PRESS 216
EONS Young Researchers Award Lecture The impact of colorectal cancer on patients and family: Implications for care H. Cotrim ESSEM, Se´tubal, Portugal Introduction: Patient and family quality of life is deeply modified when faced with the diagnosis of colorectal cancer as a result of the physical and psychological changes induced by it. Aim: To evaluate the effects of colorectal cancer in the quality of life of the Portuguese patient and family. Population and methods: We surveyed 153 colorectal cancer patients whose mean age was 64.64710.7 years (27–88 years), 103 whom were men, and who had underwent surgery for colorectal cancer. The patients filled out the quality-of-life questionnaires between 6 and 8 months after surgery. forty seven patients had rectal cancer and 106 patients had colon cancer, 46 where ostomized. The concerning caregivers were also studied. Questionnaires used to assess patients: EORTC QLQ – CR 30 and 38; Index of marital satisfaction (Hudson, 1992); Index of sexual satisfaction (Hudson, 1992); Body Image Scale (P. Hopwood et al., 2001); The Hospital Anxiety and Depression Scale (Zigmond and Snaith, 1983); Treatment Satisfaction Questionnaire (McIntyre et al., 1998). Questionnaires used to assess caregivers: Caregiver reaction assessment scale (Given et al, 1992); StateTrait Anxiety Inventory (Bieling, et al., 1998); Beck Depression Inventory (Beck et al., 1996). Results: Positive correlation between the index of marital satisfaction and the index of sexual satisfaction in ostomized (rs ¼ 0.868; P ¼ 0.000) and non-ostomized patients (rs ¼ 0.525; P ¼ 0.000). No significant differences were identified with respect to body image and marital and sexual satisfaction indexes. In terms of quality of life, ostomized patients report lower overall quality of life (P ¼ 0.000), lower body image (P ¼ 0.000), poorer health-related quality of life (P ¼ 0.000) and poor social activity (P ¼ 0.007) when compared with non-ostomized patients. Ostomized patients revealed a more marked statistically significant difference for depression (P ¼ 0.003). When we relate psychological morbidity of patients with burden of caregivers we found that depression (r ¼ 0.495; P ¼ 0.004) and anxiety (rs ¼ 0.595; P ¼ 0.000) of patients are related with burden of caregivers. In non-ostomized patients age is related with poor sexual activity
ABSTRACTS (rs ¼ 0.557; P ¼ 0.000). The caregivers of ostomized patients have more depression (P ¼ 0.025) and anxiety (P ¼ 0.016). Conclusions: Ostomy surgery has a profound influence on patient overall quality of life, sexuality and body image. Most patients suffer from high levels of anxiety and depression, in special ostomized patients. Patient caregivers also suffer from high levels of anxiety and depression. In non-ostomized patients, the age influences significantly their quality of life, particularly sexual activity. 10.1016/j.ejon.2006.04.009
B. Proffered papers Perspectives of older adults about the cancer information they receive M. Fitch Toronto Sunnybrook Cancer Centre, Oncology Nursing & Supportive Care, Toronto Ontario, Canada Introduction: An individual’s capacity to cope with the many changes and challenges following a diagnosis of cancer is influenced to a great extent by their access to relevant, understandable information. The information needs to be about the disease, its treatment, expected side effects, and available supports and resources to manage the illness. Many cancer patients have described heightened emotional distress when they are not able to obtain the information they need. Providing patient information, then, is an important aspect of oncology nursing care. However, in addition to providing the information, it is important to know whether or not the provision of the information is relevant and appropriate from the patient’s perspective. Given the busy nature of our clinical setting, there may be shortcomings in the provision of patient information. This may especially be the case for older adults who may experience unique needs in terms of learning and comprehending during times of heightened distress. This study was designed to describe the perspectives of older adults regarding the importance of cancer information and their satisfaction with the information they received. Methods: A convenience sample of 352 cancer patients, over the age of 65 years and receiving care at an ambulatory clinic, completed the Cancer Information Performance Indicator Tool. The tool is a 12 item questionnaire that ellicits responses on 5point Likert scales regarding (a) the importance of
EONS Young Researchers Award Lecture The impact of colorectal cancer on patients and family: Implications for care H. Cotrim ESSEM, Se´tubal, Portugal Introduction: Patient and family quality of life is deeply modified when faced with the diagnosis of colorectal cancer as a result of the physical and psychological changes induced by it. Aim: To evaluate the effects of colorectal cancer in the quality of life of the Portuguese patient and family. Population and methods: We surveyed 153 colorectal cancer patients whose mean age was 64.64710.7 years (27–88 years), 103 whom were men, and who had underwent surgery for colorectal cancer. The patients filled out the quality-of-life questionnaires between 6 and 8 months after surgery. forty seven patients had rectal cancer and 106 patients had colon cancer, 46 where ostomized. The concerning caregivers were also studied. Questionnaires used to assess patients: EORTC QLQ – CR 30 and 38; Index of marital satisfaction (Hudson, 1992); Index of sexual satisfaction (Hudson, 1992); Body Image Scale (P. Hopwood et al., 2001); The Hospital Anxiety and Depression Scale (Zigmond and Snaith, 1983); Treatment Satisfaction Questionnaire (McIntyre et al., 1998). Questionnaires used to assess caregivers: Caregiver reaction assessment scale (Given et al, 1992); StateTrait Anxiety Inventory (Bieling, et al., 1998); Beck Depression Inventory (Beck et al., 1996). Results: Positive correlation between the index of marital satisfaction and the index of sexual satisfaction in ostomized (rs ¼ 0.868; P ¼ 0.000) and non-ostomized patients (rs ¼ 0.525; P ¼ 0.000). No significant differences were identified with respect to body image and marital and sexual satisfaction indexes. In terms of quality of life, ostomized patients report lower overall quality of life (P ¼ 0.000), lower body image (P ¼ 0.000), poorer health-related quality of life (P ¼ 0.000) and poor social activity (P ¼ 0.007) when compared with non-ostomized patients. Ostomized patients revealed a more marked statistically significant difference for depression (P ¼ 0.003). When we relate psychological morbidity of patients with burden of caregivers we found that depression (r ¼ 0.495; P ¼ 0.004) and anxiety (rs ¼ 0.595; P ¼ 0.000) of patients are related with burden of caregivers. In non-ostomized patients age is related with poor sexual activity
ABSTRACTS (rs ¼ 0.557; P ¼ 0.000). The caregivers of ostomized patients have more depression (P ¼ 0.025) and anxiety (P ¼ 0.016). Conclusions: Ostomy surgery has a profound influence on patient overall quality of life, sexuality and body image. Most patients suffer from high levels of anxiety and depression, in special ostomized patients. Patient caregivers also suffer from high levels of anxiety and depression. In non-ostomized patients, the age influences significantly their quality of life, particularly sexual activity. 10.1016/j.ejon.2006.04.009
B. Proffered papers Perspectives of older adults about the cancer information they receive M. Fitch Toronto Sunnybrook Cancer Centre, Oncology Nursing & Supportive Care, Toronto Ontario, Canada Introduction: An individual’s capacity to cope with the many changes and challenges following a diagnosis of cancer is influenced to a great extent by their access to relevant, understandable information. The information needs to be about the disease, its treatment, expected side effects, and available supports and resources to manage the illness. Many cancer patients have described heightened emotional distress when they are not able to obtain the information they need. Providing patient information, then, is an important aspect of oncology nursing care. However, in addition to providing the information, it is important to know whether or not the provision of the information is relevant and appropriate from the patient’s perspective. Given the busy nature of our clinical setting, there may be shortcomings in the provision of patient information. This may especially be the case for older adults who may experience unique needs in terms of learning and comprehending during times of heightened distress. This study was designed to describe the perspectives of older adults regarding the importance of cancer information and their satisfaction with the information they received. Methods: A convenience sample of 352 cancer patients, over the age of 65 years and receiving care at an ambulatory clinic, completed the Cancer Information Performance Indicator Tool. The tool is a 12 item questionnaire that ellicits responses on 5point Likert scales regarding (a) the importance of