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Fulbari Program: An integrated approach at rehabilitating and empowering the child and family of children with developmental disability in Nepal
e u r o p e a n j o u r n a l o f p a e d i a t r i c n e u r o l o g y 2 1 ( 2 0 1 7 ) e 1 4 5 ee 1 4 9
children along with their mothers were called in groups of 4e6 to a well facilitated rehabilitation center in Kathmandu for intensive therapy for one month. GMFCS was classified again at the end of the month. Results: At the end of intensive rehabilitation program, an increase in GMFCS level by 1 was seen in 27 children, a raise by 2 was seen in 2 children and 19 children didn't show any change in their GMFCS. Deprived children from lower socio economic background showed more improvements. Conclusion: In an underdeveloped country like Nepal due to lack of treatment, potential of children with CP remains unexplored. Directly diagnosing a GMFCS level might be misleading, which influences counseling and further course of treatment. Therefore it is best to wait for at least one month of treatment before pronouncing a GMFCS level. Meantime, we may use a range (e.g. GMFCS Level II to III).
http://dx.doi.org/10.1016/j.ejpn.2017.04.1306
P2-161 Fulbari Program: An integrated approach at rehabilitating and empowering the child and family of children with developmental disability in Nepal Ritesh Thapa. PediatricNeurology Clinic/Cerebral Palsy Rehabilitation Center for Self-help Group for Cerebral Palsy, Nepal Objective: Facilities for rehabilitation of disabled children is scarce and inaccessible to most people in Nepal. This study aims to assess usefulness of a program called “Fulbari” to overcome this limitation in context of underdeveloped country as Nepal. Methods: In this institution and community based cross-sectional study, 48 mothers (8 families at a time) of children (2e14 years)
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diagnosed with various non-progressive developmental disorder were invited free of cost by Home Visitors of Self-help Group for Cerebral Palsy(SGCP) Nepal, for one month from 8 districts of Nepal for “Fulbari” program. In this intensive camp like program based on evidence based treatment, parents and the children were trained for pedagogy, livelihood earning skills and vocational training and received medical treatment, physiotherapy, speech therapy, occupational therapy, orthotics, assistive devices, hygiene & first-aid training. Basic screening was done at the beginning and again nine months later regarding Knowledge, Attitude and Practice(KAP) and mental health of the parents while Activities of Daily Living(ADL) & Quality of Life(QoL) of the children. Descriptive statistics and inferential statistics were used to describe and assess relationship between variables. Results: After the program, there was a significant improvement in KAP and both physical/mental health of the parents while ADL, school integration, and QoL of the children. This progress was more than the progress made in the districts or in the specialized center alone. Conclusion: Intensive camp like training program for parents and children with developmental disorder can be effective alternative in developing countries as Nepal.
http://dx.doi.org/10.1016/j.ejpn.2017.04.1307
children along with their mothers were called in groups of 4e6 to a well facilitated rehabilitation center in Kathmandu for intensive therapy for one month. GMFCS was classified again at the end of the month. Results: At the end of intensive rehabilitation program, an increase in GMFCS level by 1 was seen in 27 children, a raise by 2 was seen in 2 children and 19 children didn't show any change in their GMFCS. Deprived children from lower socio economic background showed more improvements. Conclusion: In an underdeveloped country like Nepal due to lack of treatment, potential of children with CP remains unexplored. Directly diagnosing a GMFCS level might be misleading, which influences counseling and further course of treatment. Therefore it is best to wait for at least one month of treatment before pronouncing a GMFCS level. Meantime, we may use a range (e.g. GMFCS Level II to III).
http://dx.doi.org/10.1016/j.ejpn.2017.04.1306
P2-161 Fulbari Program: An integrated approach at rehabilitating and empowering the child and family of children with developmental disability in Nepal Ritesh Thapa. PediatricNeurology Clinic/Cerebral Palsy Rehabilitation Center for Self-help Group for Cerebral Palsy, Nepal Objective: Facilities for rehabilitation of disabled children is scarce and inaccessible to most people in Nepal. This study aims to assess usefulness of a program called “Fulbari” to overcome this limitation in context of underdeveloped country as Nepal. Methods: In this institution and community based cross-sectional study, 48 mothers (8 families at a time) of children (2e14 years)
e149
diagnosed with various non-progressive developmental disorder were invited free of cost by Home Visitors of Self-help Group for Cerebral Palsy(SGCP) Nepal, for one month from 8 districts of Nepal for “Fulbari” program. In this intensive camp like program based on evidence based treatment, parents and the children were trained for pedagogy, livelihood earning skills and vocational training and received medical treatment, physiotherapy, speech therapy, occupational therapy, orthotics, assistive devices, hygiene & first-aid training. Basic screening was done at the beginning and again nine months later regarding Knowledge, Attitude and Practice(KAP) and mental health of the parents while Activities of Daily Living(ADL) & Quality of Life(QoL) of the children. Descriptive statistics and inferential statistics were used to describe and assess relationship between variables. Results: After the program, there was a significant improvement in KAP and both physical/mental health of the parents while ADL, school integration, and QoL of the children. This progress was more than the progress made in the districts or in the specialized center alone. Conclusion: Intensive camp like training program for parents and children with developmental disorder can be effective alternative in developing countries as Nepal.
http://dx.doi.org/10.1016/j.ejpn.2017.04.1307