- Email: [email protected]
Genetics expert panel sets course for 2003
AAN News & Opinion .................................................................................................................................. American
Academy
of
Nursing
A A N P u b l i c a t i o n A d v i s o r y C o m m i t t e e : Suzanne Bakken, DNSc, RN, FAAN, Jacqueline Fawcett, PhD, RN, FAAN, Suzanne L. Feetham, PhD, RN, FAAN, Roxie L. Foster, PhD, RN, FAAN, Mary R. Haack, PhD, RN, FAAN, Nancy Olson Hester, PhD, RN, FAAN, Judith A. Lewis, PhD, RNC, FAAN, Diane S. Pravikoff, PhD, RN, FAAN, Jeanne Sorrell, PhD, RN, Mary E. Stainton, MS, RNC, FAAN, Judith A. Vessey, PhD, RN, FAAN, Antonia Villarruel, PhD, RN, FAAN, Mary Wakefield, PhD, RN, FAAN, Donna Jean Zazworsky, MS, RN, CCM, and Carole Kenner, DNS, RNC, FAAN, chair
American Academy of Nursing Welcomes New Nursing Outlook Editor
T
he American Academy of Nursing proudly introduces Nursing Outlook’s new editor, Marion E. Broome, PhD, RN, FAAN. Dr. Broome is a Professor and Associate Dean for Research in the School of Nursing at the University of Alabama at Birmingham. Over the past two decades, her program of research has centered primarily on children’s responses to painful experiences and ethical issues related to children enrolled in research. Dr. Broome’s studies have been funded by the American Cancer SocietyNational, the National Institute for Nursing Research, the National Institute of Child Health and Human Development, foundations, and pharmaceutical companies. In 2001, she completed a 4-year term as a member of the Nursing Science Study Section at NIH.
Dr. Broome has published in over 55 papers in refereed nursing and medical journals, 5 books, and 10 book chapters. In addition, her work has been featured in articles in lay magazines, such as Chicago, Parent, and Redbook, and in interviews with National Public Radio and Cable News Network (CNN). Dr. Broome has served on several editorial boards, including Clinical Nurse Specialist, Pediatric Nursing, and Nursing Research. She was editor-in-chief of Capsules and Comments in Pediatric Nursing (1994-1997), published by Mosby Co., and the Journal of Child and Family Nursing (1998-2001), published by Lippincott, Williams and Wilkins. Dr. Broome will work to bring cutting-edge, controversial, and innovative manuscripts that will stimulate thinking and dialogue among members. Her focus
is to clearly reflect the myriad of academy missions, including science, health policy, and practice. Dr. Broome states, “As a member of the academy for the past 7 years, I have read many innovative and informative papers in Nursing Outlook. I think the content of the journal is diverse, useful to members, and thought provoking. I intend to build on this tradition and encourage all members to work with me to develop Nursing Outlook into the “Platinum Standard” of all nursing publications.” The academy would like to thank Dr. Carole A. Anderson, PhD, RN, FAAN, for her 10 years of service as editor of Nursing Outlook. For a “Spotlight View” of her time as editor, please visit “Spotlight on the Academy” at http://www. mosby.com/nursoutlook. 䡲
Genetics Expert Panel Sets Course for 2003
T
he American Academy of Nursing Genetics Expert Panel has defined its priorities for 2003. Under the leadership of Co-Chairs, Janet Williams, PhD, RN, FAAN, and Kate Potempa, DNSc, RN, FAAN, the panel outlined the following areas that link to AAN’s priorities: 1. Health Disparities: The panel plans to focus their efforts on influencing access to genetic health care, especially examining reimbursement issues. The position statement, Genetic Counseling for Vulnerable Populations: The Role of Nursing, authored by the Ethics Committee of the International Society of Nurses in Genetics, Inc. (ISONG) will serve as a guide for the panel NURSING OUTLOOK
MARCH/APRIL 2003
2. Nursing/Health Care Workforce Shortage: Panel members have established a plan for the Genetics Education Position Statement: Integrating Genetics Competencies into Baccalaureate and Advanced Nursing Education. 3. Quality of Care: The panel will promote efforts to assure culturally appropriate genetic health care that can be available to everyone. 4. Healthcare for the Aging Population: The panel will work to incorporate its efforts with other expert panels that are concerned with aging. A particular focus will be on presentations through scientific sessions on genetics of dis-
eases of the aged, such as osteoporosis, diabetes, Alzheimer disease, and depression. The AAN Genetics Expert Panel has representation in the following organizations and positions: ● Janet Williams PhD, RN, FAAN: CoChair, AAN Genetics Expert Panel ● Kate Potempa, DNSc, RN, FAAN: Co-Chair AAN Genetics Expert Panel ● Dale Lea, MPH, RN, CGC, APNGc, FAAN: Chair, ISONG’s Ethics Committee ● Carole Kenner, DNSc, RNC, FAAN: National Association of Neonatal Nurses (NANN), representative to National Coalition for Health Profes91
AAN News & Opinion .................................................................................................................................. American
Academy
of
Nursing
sional Education in Genetics (NCHPEG), and End of Life Panel for AACN and City of Hope Particia Flatley Brennan, PhD, RN, FAAN: Past-President of the American Medical Informatics Association Sue Donaldson, PhD, RN, FAAN: AAN representative to NCHPEG Judith Lewis, PhD, RNC, FAAN: former voting member of the Secretary’s Advisory Committee on Genetic Testing (SACGT). Dr. Lewis will rep-
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●
resent the AAN Expert Panel on Genetics and ISONG at the newly chartered advisory committee, the Secretary’s Advisory Committee on Genetics, Health and Society (SACGHS). Dr. Lewis is also a member of the Executive Committee of Nursing Education Advisory Council, National League for Nursing Joyce Newman Giger, EdD, RN, CS, FAAN: member of Research and Education Committee, NLN Jean Jenkins, PhD, RN, FAAN: Senior
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Clinical Advisor, Office of the Director for National Human Genome Research Institute (NHGRI) Suzanne Feetham, PhD, RN, FAAN: Senior Advisor, Office of Director, Bureau of Primary Health Care, Health Resources and Services Administration Elizabeth Thomson, MS, RN, CGC, FAAN: Program Director for Clinical Genetics and Research Ethics, Ethical, Legal and Social Issues Research Program, NHGRI. 䡲
A Half-Dozen Health Policy Hints Bonnie Mowinski Jennings, RN, DNSc, FAAN American Academy of Nursing/American Nurses Foundation Institute of Medicine Nurse Scholar in Residence
D
uring my first few months as the IOM nurse scholar, I had the opportunity to visit several federal agencies, think tanks, trade associations, and similar entities. The differing views expressed by people within these organizations were useful to me in thinking about health policy. My thoughts are consolidated below in a half-dozen health policy hints. You may find them useful as you exert your personal leadership in shaping health policy, or you may find them naı¨ve. For me, they are a synthesis that validates existing beliefs and illuminates new insights. The political dance. Inherent to doing business in the nation’s capitol is a political dance involving relationships and networking. “Who knows who” makes a sizable difference in determining who is invited to dialogues on key issues and who is heard before, during, and after the dialogues. The political dance underscores that competence alone is insufficient as a basis for participation. A key to partnering for the political dance is developing a personal style that is characterized by smoothness and elegance. There is nothing startling in this hint, but the 92
Washington scene simply takes relationships to a new level. The policy pie. Although health care is becoming a crisis, and some individuals even see it as a top priority on the domestic policy agenda, health care will necessarily remain on the fringes as more pressing issues prevail, such as the economy and national security. Quality care is even less visible on the policy agenda than health care itself. It is evident that various constituencies misread the public regarding the importance of quality care—it simply does not get support from the rank and file. The “M’s” take center stage. The “M’s” —Medicare and Medicaid— dominate health policy discussions. In other words, another “M— money— is the focus. The cost of state run Medicaid programs now exceeds the cost of the federally run Medicare program. Quality, patient safety, and workforce issues are therefore overshadowed by cost. The voice of nursing may not be heard in the health policy arena because our professional emphasis is on concerns other than cost.
The workforce. Issues pertaining to the workforce were mentioned infrequently in the various visits. That was a bit surprising. When they were, discussions took an interesting turn, which was also unexpected. Physician shortages were viewed as a national issue, while nursing shortages were portrayed as state issues. Leverage points for action are quite different at the national level and at the state level. For nursing then, is the workforce one issue, 50 issues, or both? The details. Grasping the details is important to participating fully in policy discussions. To follow health care issues requires an understanding of the complex language surrounding each issue and the details that distinguish various proposals. The assorted Medicare prescription drug benefit packages, for example, represent a large number of different bills. The issue is less one of whether there should be a prescription drug benefit but rather what constitutes the benefit, for whom, and at what cost. The evidence. The policy world is very fast-paced. Policy makers are more likely, therefore, to be persuaded by
VOLUME 51 • NUMBER 2 NURSING OUTLOOK
Academy
of
Nursing
A A N P u b l i c a t i o n A d v i s o r y C o m m i t t e e : Suzanne Bakken, DNSc, RN, FAAN, Jacqueline Fawcett, PhD, RN, FAAN, Suzanne L. Feetham, PhD, RN, FAAN, Roxie L. Foster, PhD, RN, FAAN, Mary R. Haack, PhD, RN, FAAN, Nancy Olson Hester, PhD, RN, FAAN, Judith A. Lewis, PhD, RNC, FAAN, Diane S. Pravikoff, PhD, RN, FAAN, Jeanne Sorrell, PhD, RN, Mary E. Stainton, MS, RNC, FAAN, Judith A. Vessey, PhD, RN, FAAN, Antonia Villarruel, PhD, RN, FAAN, Mary Wakefield, PhD, RN, FAAN, Donna Jean Zazworsky, MS, RN, CCM, and Carole Kenner, DNS, RNC, FAAN, chair
American Academy of Nursing Welcomes New Nursing Outlook Editor
T
he American Academy of Nursing proudly introduces Nursing Outlook’s new editor, Marion E. Broome, PhD, RN, FAAN. Dr. Broome is a Professor and Associate Dean for Research in the School of Nursing at the University of Alabama at Birmingham. Over the past two decades, her program of research has centered primarily on children’s responses to painful experiences and ethical issues related to children enrolled in research. Dr. Broome’s studies have been funded by the American Cancer SocietyNational, the National Institute for Nursing Research, the National Institute of Child Health and Human Development, foundations, and pharmaceutical companies. In 2001, she completed a 4-year term as a member of the Nursing Science Study Section at NIH.
Dr. Broome has published in over 55 papers in refereed nursing and medical journals, 5 books, and 10 book chapters. In addition, her work has been featured in articles in lay magazines, such as Chicago, Parent, and Redbook, and in interviews with National Public Radio and Cable News Network (CNN). Dr. Broome has served on several editorial boards, including Clinical Nurse Specialist, Pediatric Nursing, and Nursing Research. She was editor-in-chief of Capsules and Comments in Pediatric Nursing (1994-1997), published by Mosby Co., and the Journal of Child and Family Nursing (1998-2001), published by Lippincott, Williams and Wilkins. Dr. Broome will work to bring cutting-edge, controversial, and innovative manuscripts that will stimulate thinking and dialogue among members. Her focus
is to clearly reflect the myriad of academy missions, including science, health policy, and practice. Dr. Broome states, “As a member of the academy for the past 7 years, I have read many innovative and informative papers in Nursing Outlook. I think the content of the journal is diverse, useful to members, and thought provoking. I intend to build on this tradition and encourage all members to work with me to develop Nursing Outlook into the “Platinum Standard” of all nursing publications.” The academy would like to thank Dr. Carole A. Anderson, PhD, RN, FAAN, for her 10 years of service as editor of Nursing Outlook. For a “Spotlight View” of her time as editor, please visit “Spotlight on the Academy” at http://www. mosby.com/nursoutlook. 䡲
Genetics Expert Panel Sets Course for 2003
T
he American Academy of Nursing Genetics Expert Panel has defined its priorities for 2003. Under the leadership of Co-Chairs, Janet Williams, PhD, RN, FAAN, and Kate Potempa, DNSc, RN, FAAN, the panel outlined the following areas that link to AAN’s priorities: 1. Health Disparities: The panel plans to focus their efforts on influencing access to genetic health care, especially examining reimbursement issues. The position statement, Genetic Counseling for Vulnerable Populations: The Role of Nursing, authored by the Ethics Committee of the International Society of Nurses in Genetics, Inc. (ISONG) will serve as a guide for the panel NURSING OUTLOOK
MARCH/APRIL 2003
2. Nursing/Health Care Workforce Shortage: Panel members have established a plan for the Genetics Education Position Statement: Integrating Genetics Competencies into Baccalaureate and Advanced Nursing Education. 3. Quality of Care: The panel will promote efforts to assure culturally appropriate genetic health care that can be available to everyone. 4. Healthcare for the Aging Population: The panel will work to incorporate its efforts with other expert panels that are concerned with aging. A particular focus will be on presentations through scientific sessions on genetics of dis-
eases of the aged, such as osteoporosis, diabetes, Alzheimer disease, and depression. The AAN Genetics Expert Panel has representation in the following organizations and positions: ● Janet Williams PhD, RN, FAAN: CoChair, AAN Genetics Expert Panel ● Kate Potempa, DNSc, RN, FAAN: Co-Chair AAN Genetics Expert Panel ● Dale Lea, MPH, RN, CGC, APNGc, FAAN: Chair, ISONG’s Ethics Committee ● Carole Kenner, DNSc, RNC, FAAN: National Association of Neonatal Nurses (NANN), representative to National Coalition for Health Profes91
AAN News & Opinion .................................................................................................................................. American
Academy
of
Nursing
sional Education in Genetics (NCHPEG), and End of Life Panel for AACN and City of Hope Particia Flatley Brennan, PhD, RN, FAAN: Past-President of the American Medical Informatics Association Sue Donaldson, PhD, RN, FAAN: AAN representative to NCHPEG Judith Lewis, PhD, RNC, FAAN: former voting member of the Secretary’s Advisory Committee on Genetic Testing (SACGT). Dr. Lewis will rep-
●
● ●
●
●
resent the AAN Expert Panel on Genetics and ISONG at the newly chartered advisory committee, the Secretary’s Advisory Committee on Genetics, Health and Society (SACGHS). Dr. Lewis is also a member of the Executive Committee of Nursing Education Advisory Council, National League for Nursing Joyce Newman Giger, EdD, RN, CS, FAAN: member of Research and Education Committee, NLN Jean Jenkins, PhD, RN, FAAN: Senior
●
●
Clinical Advisor, Office of the Director for National Human Genome Research Institute (NHGRI) Suzanne Feetham, PhD, RN, FAAN: Senior Advisor, Office of Director, Bureau of Primary Health Care, Health Resources and Services Administration Elizabeth Thomson, MS, RN, CGC, FAAN: Program Director for Clinical Genetics and Research Ethics, Ethical, Legal and Social Issues Research Program, NHGRI. 䡲
A Half-Dozen Health Policy Hints Bonnie Mowinski Jennings, RN, DNSc, FAAN American Academy of Nursing/American Nurses Foundation Institute of Medicine Nurse Scholar in Residence
D
uring my first few months as the IOM nurse scholar, I had the opportunity to visit several federal agencies, think tanks, trade associations, and similar entities. The differing views expressed by people within these organizations were useful to me in thinking about health policy. My thoughts are consolidated below in a half-dozen health policy hints. You may find them useful as you exert your personal leadership in shaping health policy, or you may find them naı¨ve. For me, they are a synthesis that validates existing beliefs and illuminates new insights. The political dance. Inherent to doing business in the nation’s capitol is a political dance involving relationships and networking. “Who knows who” makes a sizable difference in determining who is invited to dialogues on key issues and who is heard before, during, and after the dialogues. The political dance underscores that competence alone is insufficient as a basis for participation. A key to partnering for the political dance is developing a personal style that is characterized by smoothness and elegance. There is nothing startling in this hint, but the 92
Washington scene simply takes relationships to a new level. The policy pie. Although health care is becoming a crisis, and some individuals even see it as a top priority on the domestic policy agenda, health care will necessarily remain on the fringes as more pressing issues prevail, such as the economy and national security. Quality care is even less visible on the policy agenda than health care itself. It is evident that various constituencies misread the public regarding the importance of quality care—it simply does not get support from the rank and file. The “M’s” take center stage. The “M’s” —Medicare and Medicaid— dominate health policy discussions. In other words, another “M— money— is the focus. The cost of state run Medicaid programs now exceeds the cost of the federally run Medicare program. Quality, patient safety, and workforce issues are therefore overshadowed by cost. The voice of nursing may not be heard in the health policy arena because our professional emphasis is on concerns other than cost.
The workforce. Issues pertaining to the workforce were mentioned infrequently in the various visits. That was a bit surprising. When they were, discussions took an interesting turn, which was also unexpected. Physician shortages were viewed as a national issue, while nursing shortages were portrayed as state issues. Leverage points for action are quite different at the national level and at the state level. For nursing then, is the workforce one issue, 50 issues, or both? The details. Grasping the details is important to participating fully in policy discussions. To follow health care issues requires an understanding of the complex language surrounding each issue and the details that distinguish various proposals. The assorted Medicare prescription drug benefit packages, for example, represent a large number of different bills. The issue is less one of whether there should be a prescription drug benefit but rather what constitutes the benefit, for whom, and at what cost. The evidence. The policy world is very fast-paced. Policy makers are more likely, therefore, to be persuaded by
VOLUME 51 • NUMBER 2 NURSING OUTLOOK