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OMG, a Kid is Coming!: Preparing Community Hospice and Palliative Care Providers to Care for Children (TH337)
356
Schedule With Abstracts
a life-limiting condition. In addition, the multidisciplinary panel of palliative care and pulmonary hypertension experts will discuss their combined experience caring for patients nearing and at the end of life. These experiences will also include de-escalating advanced therapies such as continuous prostacylins at the end of life. The speakers will discuss common barriers at end of life for pulmonary hypertension patients and provide some potential ways to overcome these hurdles. The session will draw upon a combination of lecture and case examples to highlight these important teaching points.
OMG, a Kid is Coming!: Preparing Community Hospice and Palliative Care Providers to Care for Children (TH337) Sam Perna, DO, Children’s of Alabama/University of Alabama Birmingham, Birmingham, AL. Lou Lacey, LPC, Children’s of Alabama, Birmingham, AL. Lynn Vaughn, MSN RN, Children’s of Alabama, Birmingham, AL. Ashley Nichols, MD, University of Alabama Birmingham Center for Palliative and Supportive Care, Birmingham, AL. (All authors listed above had no relevant financial relationships to disclose.) Objectives 1. Develop skilled community hospice/palliative care providers for children with serious/life limiting illness. 2. Discuss effective strategies and challenges for the delivery and advocacy of hospice and palliative care for children in their communities where they live by educating and empowering home hospice and home health providers. 3. Identify opportunities to influence, initiate, maintain, and advance the practice and improve care transitions for palliative care for children with life-limiting illness returning to their homes. Children’s of Alabama is the only free-standing, independent hospital in Alabama dedicated solely to the treatment of children and is one of just 45 free-standing pediatric medical centers in the United States. Each year, more than 650,000 children receive treatment and care at Children’s of Alabama. Pediatric Hospice Day of Learning is an innovative teaching curriculum developed by the palliative care team at Children’s of Alabama. Shortly
Vol. 45 No. 2 February 2013
after starting the palliative care inpatient service, we discovered the deficit in hospice and palliative care services for the pediatric population across the state of Alabama. This was more pronounced in rural and underserved communities. In response, we developed a program titled Hospice Day of Learning. We invited hospice companies to send their staff (chaplains, social workers, nurses, and physicians) and taught participants the essentials of pediatric hospice and palliative care. Counselors, chaplains, social workers, nurses, nurse practitioners, and physicians led these classes to help the attendees understand approaches to pain and symptom management and differences between the care of adults and children, how to deal with the families of terminally ill children, and, most importantly, the clinical skills necessary to care for the different type of lines, tubes, and devices that may accompany pediatric patients. We found after our first year of Hospice Day of Learning that our hospice companies were extremely thankful and eager for more education. Attendees will receive: (a) a checklist for developing and implementing a Hospice Day of Learning, (b) a sample agenda with suggested topics for attendees, and (b) example marketing materials including an opioid dose conversion card.
Spiritual Narrative in Palliative Care Practice and Team Care (TH338) Denise Hess, MDiv BCC, Providence Little Company of Mary Medical Center, Torrance, CA. Glen Komatsu, MD, Providence TrinityCare Hospice, Torrance, CA. (All authors listed above had no relevant financial relationships to disclose.) Objectives 1. Articulate the similarities and differences between multi-, inter-, and transdisciplinary palliative care teams. 2. Understand the theoretical background and application of spiritual narratives for palliative care team development. 3. Explore the implications of the research outcomes for other palliative care and team settings. Ideally, palliative care is whole person care provided by a team of medical and psychosocial-spiritual clinicians. As such, the palliative care team functions as a dynamic system whose ability to provide quality care is dependent upon the
Schedule With Abstracts
a life-limiting condition. In addition, the multidisciplinary panel of palliative care and pulmonary hypertension experts will discuss their combined experience caring for patients nearing and at the end of life. These experiences will also include de-escalating advanced therapies such as continuous prostacylins at the end of life. The speakers will discuss common barriers at end of life for pulmonary hypertension patients and provide some potential ways to overcome these hurdles. The session will draw upon a combination of lecture and case examples to highlight these important teaching points.
OMG, a Kid is Coming!: Preparing Community Hospice and Palliative Care Providers to Care for Children (TH337) Sam Perna, DO, Children’s of Alabama/University of Alabama Birmingham, Birmingham, AL. Lou Lacey, LPC, Children’s of Alabama, Birmingham, AL. Lynn Vaughn, MSN RN, Children’s of Alabama, Birmingham, AL. Ashley Nichols, MD, University of Alabama Birmingham Center for Palliative and Supportive Care, Birmingham, AL. (All authors listed above had no relevant financial relationships to disclose.) Objectives 1. Develop skilled community hospice/palliative care providers for children with serious/life limiting illness. 2. Discuss effective strategies and challenges for the delivery and advocacy of hospice and palliative care for children in their communities where they live by educating and empowering home hospice and home health providers. 3. Identify opportunities to influence, initiate, maintain, and advance the practice and improve care transitions for palliative care for children with life-limiting illness returning to their homes. Children’s of Alabama is the only free-standing, independent hospital in Alabama dedicated solely to the treatment of children and is one of just 45 free-standing pediatric medical centers in the United States. Each year, more than 650,000 children receive treatment and care at Children’s of Alabama. Pediatric Hospice Day of Learning is an innovative teaching curriculum developed by the palliative care team at Children’s of Alabama. Shortly
Vol. 45 No. 2 February 2013
after starting the palliative care inpatient service, we discovered the deficit in hospice and palliative care services for the pediatric population across the state of Alabama. This was more pronounced in rural and underserved communities. In response, we developed a program titled Hospice Day of Learning. We invited hospice companies to send their staff (chaplains, social workers, nurses, and physicians) and taught participants the essentials of pediatric hospice and palliative care. Counselors, chaplains, social workers, nurses, nurse practitioners, and physicians led these classes to help the attendees understand approaches to pain and symptom management and differences between the care of adults and children, how to deal with the families of terminally ill children, and, most importantly, the clinical skills necessary to care for the different type of lines, tubes, and devices that may accompany pediatric patients. We found after our first year of Hospice Day of Learning that our hospice companies were extremely thankful and eager for more education. Attendees will receive: (a) a checklist for developing and implementing a Hospice Day of Learning, (b) a sample agenda with suggested topics for attendees, and (b) example marketing materials including an opioid dose conversion card.
Spiritual Narrative in Palliative Care Practice and Team Care (TH338) Denise Hess, MDiv BCC, Providence Little Company of Mary Medical Center, Torrance, CA. Glen Komatsu, MD, Providence TrinityCare Hospice, Torrance, CA. (All authors listed above had no relevant financial relationships to disclose.) Objectives 1. Articulate the similarities and differences between multi-, inter-, and transdisciplinary palliative care teams. 2. Understand the theoretical background and application of spiritual narratives for palliative care team development. 3. Explore the implications of the research outcomes for other palliative care and team settings. Ideally, palliative care is whole person care provided by a team of medical and psychosocial-spiritual clinicians. As such, the palliative care team functions as a dynamic system whose ability to provide quality care is dependent upon the