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The African Palliative Care Association (APCA) Atlas of Palliative Care Development in Africa: a comparative analysis
Abstracts
The African Palliative Care Association (APCA) Atlas of Palliative Care Development in Africa: a comparative analysis John Y Rhee, Eduardo Garralda, Eve Namisango, Emmanuel Luyirika, Liliana de Lima, Richard A Powell, Carlos Centeno
Abstract
Background Although there are global studies on palliative care development, none report region-specific indicators of development for each country in Africa. We aimed to develop and deploy a set of indicators to measure the current state of palliative care development in Africa according to WHO’s Public Health Strategy for integrating palliative care, including policies, availability and access to medicines, education, and service provision. Methods Qualitative interviews were conducted with 16 country experts between March and August, 2016. From those interviews, 367 indicators were derived, 130 after exclusion criteria and content analysis were performed. The country experts rated the indicators for validity and feasibility, a 14-member international committee of experts participated in a two-round modified UCLA-RAND Delphi consensus, and the coauthors ranked the indicators during November– December 2016. The final 19 indicators were further defined and sent to 66 key country informants from 51 African countries during January–March 2017. Findings Surveys were received from 48 countries. Uganda, South Africa, and Kenya have the highest number of specialised hospice and palliative care services (71% of identified palliative care services); 19% (9/48) have no identified hospice and palliative care services. 22% (12/48) indicated having stand-alone palliative care policies, and 42% (20/48) reported having a dedicated person for palliative care in the Ministry. Zambia, Uganda, South Africa, Kenya, Ghana, and Egypt reported some official form of physician accreditation. Opioid consumption per capita was low (75% of countries had <1 mg consumption per head per year) compared to the global average (62 mg), with the highest consumption in Mauritius, South Africa, Namibia, and Morocco. 54% (26/48) reported having a national palliative care association. These data were used to build the African Palliative Care Association (APCA) Atlas of Palliative Care in Africa, the first comparative, quantitative, African-specific report on national palliative care development in African countries.
Published Online March 15, 2018 Icahn School of Medicine at Mount Sinai, New York, NY, USA (J Y Rhee); University of Navarra, Pamplona, Spain (E Garralda, C Centeno); African Palliative Care Association, Kampala, Uganda (E Namisango, E Luyirika); International Association for Hospice and Palliative Care, Houston, TX, USA (L de Lima); MWAPO Health Development Group, Nairobi, Kenya (R A Powell) Correspondence to: John Y Rhee, Icahn School of Medicine at Mount Sinai, New York, NY, USA [email protected]
Interpretation There is limited palliative care development in Africa, but there is also a significant improvement in the number of countries with hospice and palliative care services, compared to previous reports. Improvements in advocacy were identified, with more than half of countries reporting a national palliative care association. Governments need to take the steps to improve education, increase the number of services, and ensure safe access to opioids. Funding Arnhold Institute of Global Health at the Icahn School of Medicine at Mount Sinai, the African Palliative Care Association, the International Association for Hospice and Palliative Care, and the Institute for Culture and Society at the University of Navarra. Copyright © The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY 4.0 license. Declaration of interests We declare no competing interests.
www.thelancet.com/lancetgh
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The African Palliative Care Association (APCA) Atlas of Palliative Care Development in Africa: a comparative analysis John Y Rhee, Eduardo Garralda, Eve Namisango, Emmanuel Luyirika, Liliana de Lima, Richard A Powell, Carlos Centeno
Abstract
Background Although there are global studies on palliative care development, none report region-specific indicators of development for each country in Africa. We aimed to develop and deploy a set of indicators to measure the current state of palliative care development in Africa according to WHO’s Public Health Strategy for integrating palliative care, including policies, availability and access to medicines, education, and service provision. Methods Qualitative interviews were conducted with 16 country experts between March and August, 2016. From those interviews, 367 indicators were derived, 130 after exclusion criteria and content analysis were performed. The country experts rated the indicators for validity and feasibility, a 14-member international committee of experts participated in a two-round modified UCLA-RAND Delphi consensus, and the coauthors ranked the indicators during November– December 2016. The final 19 indicators were further defined and sent to 66 key country informants from 51 African countries during January–March 2017. Findings Surveys were received from 48 countries. Uganda, South Africa, and Kenya have the highest number of specialised hospice and palliative care services (71% of identified palliative care services); 19% (9/48) have no identified hospice and palliative care services. 22% (12/48) indicated having stand-alone palliative care policies, and 42% (20/48) reported having a dedicated person for palliative care in the Ministry. Zambia, Uganda, South Africa, Kenya, Ghana, and Egypt reported some official form of physician accreditation. Opioid consumption per capita was low (75% of countries had <1 mg consumption per head per year) compared to the global average (62 mg), with the highest consumption in Mauritius, South Africa, Namibia, and Morocco. 54% (26/48) reported having a national palliative care association. These data were used to build the African Palliative Care Association (APCA) Atlas of Palliative Care in Africa, the first comparative, quantitative, African-specific report on national palliative care development in African countries.
Published Online March 15, 2018 Icahn School of Medicine at Mount Sinai, New York, NY, USA (J Y Rhee); University of Navarra, Pamplona, Spain (E Garralda, C Centeno); African Palliative Care Association, Kampala, Uganda (E Namisango, E Luyirika); International Association for Hospice and Palliative Care, Houston, TX, USA (L de Lima); MWAPO Health Development Group, Nairobi, Kenya (R A Powell) Correspondence to: John Y Rhee, Icahn School of Medicine at Mount Sinai, New York, NY, USA [email protected]
Interpretation There is limited palliative care development in Africa, but there is also a significant improvement in the number of countries with hospice and palliative care services, compared to previous reports. Improvements in advocacy were identified, with more than half of countries reporting a national palliative care association. Governments need to take the steps to improve education, increase the number of services, and ensure safe access to opioids. Funding Arnhold Institute of Global Health at the Icahn School of Medicine at Mount Sinai, the African Palliative Care Association, the International Association for Hospice and Palliative Care, and the Institute for Culture and Society at the University of Navarra. Copyright © The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY 4.0 license. Declaration of interests We declare no competing interests.
www.thelancet.com/lancetgh
21