- Email: [email protected]
Pediatric Nursing Actions to Promote Child Welfare
e16
evidence-based nursing care in the provision of family-centered care to children and their families. Methods: The process of evidence-based practice (EBP) includes clarifying the question, collecting best evidence, making critical appraisal of the evidence, integrating the evidence with providers' clinical expertise and patient and family preferences, and evaluating the plan of care. The presentation will demonstrate clarifying the question, finding the evidence, rating the evidence, implementing and testing the evidence for your practice setting. Findings: Several examples from clinical practice in several children's hospitals will be included: family-centered care in an infant and toddler unit, family presence during failed resuscitation, ventilator bundles to prevent pneumonia and create evidence-based policies and procedures, and the development of an obesity prevention practice guideline for pediatric nurse practitioners. Discussion: EBP is a systematic approach to problem solving using the best evidence currently available for clinical decision making. Nurses who practice in a variety of clinical settings will benefit from learning the principles of EBP and the process for searching for the best evidence to guide their practice. 004—Parents' Communication with Siblings of Children With Sickle Cell Disease. Carolyn Graff, PhD, RN, Ruth Roberts, EdD, Margery Johnson, LCSW, Pennie Heath, LCSW, Belinda Hardy, MSW, Heather Hall, MSN, RN, Jane Hankins, MD, MS, University of Tennessee Health Science Center, Memphis, TN; St. Jude Children's Research Hospital, Memphis, TN Purpose: The impact on siblings when their brother or sister has a genetic disorder is both positive and negative. Parents and professionals have not been viewed as being supportive and helpful to siblings. Because no studies have been conducted solely on parent–sibling communication about sickle cell disease (SCD), we explored parents' views of their communication with siblings of children with SCD. Method/Research Question: We sought to understand (a) the structure of communication about SCD; (b) the information, attitudes, and opinions about SCD that are shared; (c) factors that influence communication about SCD; (d) communication about the impact of SCD stigma on the sibling and family; and (e) strategies to improve and support communication about SCD. Parents whose children with SCD ranged in age from 1 and 21 years were recruited to participate in semistructured focus group interviews. Researchers used interpretive qualitative analysis to identify themes and NVivo7 to conduct structural qualitative analysis. Findings: The 16 participating parents had a mean age of 40.6 years; 15 parents were women. Preliminary analysis indicated that direct communication focused on socializing the sibling and child with SCD and managing tension related to SCD. Indirect communication was communication between parents and others (excluding the sibling) and between sibling and others (excluding the parent). Indirect communication about SCD focused on future planning, parent support, problem solving, tension management, and the genetics of SCD. Conclusion/Discussion: Final analysis will guide future research and create practical strategies to assist parents in their communication with siblings of children with SCD.
RESEARCH
005—Parents' Views of Existing and Needed Supports and Resources for Families of Children With Autism. Heather Hall, MSN, RNC, J. Carolyn Graff, PhD, RN, University of South Alabama, Mobile, AL; University of Tennessee Health Science Center, Memphis, TN Purpose: The purpose of this study was to examine parents' views of the resources and support they need to assist their families and children with autism. Method/Research Question: Researchers conducted a focus group interview with nine parents (seven mothers and two fathers). Parents' views of available and needed resources and supports and factors influencing parent's access to these resources and supports were explored during the focus group interview. Results: Inductive analysis of data was generated through NVivo7 software. There are five main categories related to resources and supports for families of children with autism: (a) parental stress, (b) parental coping, (c) support networks, (d) future, and (e) education. Conclusion/Discussion: Families of children with autism reported that there is a need for additional resources in southern Alabama to meet the needs of children diagnosed as having autism and their families. These findings will guide future research to create practical strategies that assure parents have access to resources and supports to meet their own needs and the needs of their child with autism and their family. 006—Pediatric Nursing Actions to Promote Child Welfare. Judith W. Herrman, PhD, RN, Shirley Girouard, PhD, RN, FAAN, Linda Van Roeyen, MS, CPNP, CFNP, Myra Huth, PhD, RN, The issue of child welfare is important to pediatric nurses and to the health care of children. The definition of child welfare is simply those issues related to whether children fare well in a nation, a society, or throughout the world. The issues associated with child welfare are many. Any situation or environment that places a child's health and well-being at risk may be considered threats to child welfare. These may include children who are abused and neglected, children in foster care, children with mental health issues, children in juvenile detention, and many others. These situations all warrant the attention of pediatric nurses. In addition, pediatric nurses are concerned with the priorities of children with special needs, those associated with ensuring the continuation of care and services after inpatient discharge, and the care of medically fragile children in the community. The roles of the nurse in child welfare issues are that of advocate and champion for those needing advocacy and protection. These roles may differ based on the nursing practice area, whether in acute care, in community health, as a researcher, or in the policy arena. This session will discuss key children welfare issues, describe selected child welfare initiatives in the nation, and share the newly created position statement of the Society of Pediatric Nurses (SPN). Personal, organizational, national, and global child welfare initiatives will be presented, and new ideas for potential projects will be generated among class participants. This initiative, set in motion by the Public Policy Committee, will be an ongoing effort to enhance the welfare of children and to ensure active roles by interested members of the SPN.
evidence-based nursing care in the provision of family-centered care to children and their families. Methods: The process of evidence-based practice (EBP) includes clarifying the question, collecting best evidence, making critical appraisal of the evidence, integrating the evidence with providers' clinical expertise and patient and family preferences, and evaluating the plan of care. The presentation will demonstrate clarifying the question, finding the evidence, rating the evidence, implementing and testing the evidence for your practice setting. Findings: Several examples from clinical practice in several children's hospitals will be included: family-centered care in an infant and toddler unit, family presence during failed resuscitation, ventilator bundles to prevent pneumonia and create evidence-based policies and procedures, and the development of an obesity prevention practice guideline for pediatric nurse practitioners. Discussion: EBP is a systematic approach to problem solving using the best evidence currently available for clinical decision making. Nurses who practice in a variety of clinical settings will benefit from learning the principles of EBP and the process for searching for the best evidence to guide their practice. 004—Parents' Communication with Siblings of Children With Sickle Cell Disease. Carolyn Graff, PhD, RN, Ruth Roberts, EdD, Margery Johnson, LCSW, Pennie Heath, LCSW, Belinda Hardy, MSW, Heather Hall, MSN, RN, Jane Hankins, MD, MS, University of Tennessee Health Science Center, Memphis, TN; St. Jude Children's Research Hospital, Memphis, TN Purpose: The impact on siblings when their brother or sister has a genetic disorder is both positive and negative. Parents and professionals have not been viewed as being supportive and helpful to siblings. Because no studies have been conducted solely on parent–sibling communication about sickle cell disease (SCD), we explored parents' views of their communication with siblings of children with SCD. Method/Research Question: We sought to understand (a) the structure of communication about SCD; (b) the information, attitudes, and opinions about SCD that are shared; (c) factors that influence communication about SCD; (d) communication about the impact of SCD stigma on the sibling and family; and (e) strategies to improve and support communication about SCD. Parents whose children with SCD ranged in age from 1 and 21 years were recruited to participate in semistructured focus group interviews. Researchers used interpretive qualitative analysis to identify themes and NVivo7 to conduct structural qualitative analysis. Findings: The 16 participating parents had a mean age of 40.6 years; 15 parents were women. Preliminary analysis indicated that direct communication focused on socializing the sibling and child with SCD and managing tension related to SCD. Indirect communication was communication between parents and others (excluding the sibling) and between sibling and others (excluding the parent). Indirect communication about SCD focused on future planning, parent support, problem solving, tension management, and the genetics of SCD. Conclusion/Discussion: Final analysis will guide future research and create practical strategies to assist parents in their communication with siblings of children with SCD.
RESEARCH
005—Parents' Views of Existing and Needed Supports and Resources for Families of Children With Autism. Heather Hall, MSN, RNC, J. Carolyn Graff, PhD, RN, University of South Alabama, Mobile, AL; University of Tennessee Health Science Center, Memphis, TN Purpose: The purpose of this study was to examine parents' views of the resources and support they need to assist their families and children with autism. Method/Research Question: Researchers conducted a focus group interview with nine parents (seven mothers and two fathers). Parents' views of available and needed resources and supports and factors influencing parent's access to these resources and supports were explored during the focus group interview. Results: Inductive analysis of data was generated through NVivo7 software. There are five main categories related to resources and supports for families of children with autism: (a) parental stress, (b) parental coping, (c) support networks, (d) future, and (e) education. Conclusion/Discussion: Families of children with autism reported that there is a need for additional resources in southern Alabama to meet the needs of children diagnosed as having autism and their families. These findings will guide future research to create practical strategies that assure parents have access to resources and supports to meet their own needs and the needs of their child with autism and their family. 006—Pediatric Nursing Actions to Promote Child Welfare. Judith W. Herrman, PhD, RN, Shirley Girouard, PhD, RN, FAAN, Linda Van Roeyen, MS, CPNP, CFNP, Myra Huth, PhD, RN, The issue of child welfare is important to pediatric nurses and to the health care of children. The definition of child welfare is simply those issues related to whether children fare well in a nation, a society, or throughout the world. The issues associated with child welfare are many. Any situation or environment that places a child's health and well-being at risk may be considered threats to child welfare. These may include children who are abused and neglected, children in foster care, children with mental health issues, children in juvenile detention, and many others. These situations all warrant the attention of pediatric nurses. In addition, pediatric nurses are concerned with the priorities of children with special needs, those associated with ensuring the continuation of care and services after inpatient discharge, and the care of medically fragile children in the community. The roles of the nurse in child welfare issues are that of advocate and champion for those needing advocacy and protection. These roles may differ based on the nursing practice area, whether in acute care, in community health, as a researcher, or in the policy arena. This session will discuss key children welfare issues, describe selected child welfare initiatives in the nation, and share the newly created position statement of the Society of Pediatric Nurses (SPN). Personal, organizational, national, and global child welfare initiatives will be presented, and new ideas for potential projects will be generated among class participants. This initiative, set in motion by the Public Policy Committee, will be an ongoing effort to enhance the welfare of children and to ensure active roles by interested members of the SPN.