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PO73 Communication with young women with breast cancer
Advocacy and Nursing / The Breast 23S1 (2014) S24–S30
PO71 Breast cancer in the family – helping children cope S. Ginsberg. Rethink Breast Cancer, Department of Support & Education, Toronto, Canada One of the many unique challenges that young women with breast cancer face is raising young children, both during treatment and following treatment. Studies on the impact of parental cancer show children and teens experience distress when living with a parent with cancer, and that those with parents with more advanced disease appear to be the most distressed. However, children are amazingly resilient and a growing body of evidence also suggests that with the right information, attention and support, children can learn to cope with a cancer diagnosis in the family and the significant impact it may have on their daily lives. Rethink Breast Cancer created two resources and several programs to help support families coping with a breast cancer diagnosis. The Kids’ Guide to Mommy’s Breast Cancer is a creative and informative book for young children to enjoy and relate to as they and their families cope with the challenges of breast cancer and treatment. The Talking to your kids about breast cancer: A guide for parents booklet, available in both French and English, is intended to prepare families and care-givers with a greater understanding of the impact of cancer in the family and on children at different ages and stages of development. This presentation will provide a live demonstration of these resources and best practices for creating effective programming to support the needs of the entire family. The presenter will explore a model of support which includes: what and how to talk to children about breast cancer and its treatment; learn helpful strategies and tips to best support children’s coping patterns; learn how to recognize children’s cues for more information and support; and the importance of supporting parents/guardians in supporting their children. PO72 Using a national needs assessment to direct programs for young women affected by breast cancer in the United States A. Hanson1 , J. Guglielmino2 , K. Ashing3 . 1 Living Beyond Breast Cancer, Department of Young Women’s Initiative, Haverford, PA, USA, 2 Living Beyond Breast Cancer, Department of Programs, Haverford, PA, USA, 3 City of Hope Medical Center, Department of Center of Community Alliance for Research & Education, Durate, CA, USA Ten percent of breast cancer cases occur in US women under age 45. Although younger women are less likely than older women to be diagnosed, their survivorship needs can differ, making breast cancer a significant public health concern for this age group. To address this need, Living Beyond Breast Cancer developed new national programming for young women, after conducting a needs assessment and selecting program priorities based the findings. This project was funded through a cooperative agreement with the US Centers for Disease Control and Prevention. LBBC identified the needs of women diagnosed with breast cancer before age 45 and determined how young women prefer to receive emotional support and breast cancer information. Needs assessment phases were (1) Environmental scan to identify existing resources, (2) Key informant interviews with 12 healthcare providers, (3) Four focus groups with 32 women. (4) 85-question national online survey completed by 1,474 women diagnosed with breast cancer before age 45. LBBC analyzed findings by stage, ethnicity, age and time since diagnosis, setting program priorities based on these findings. The needs assessment findings led LBBC to create online resources for young women, expand the Breast Cancer Helpline, develop a Young Advocate Program, and educate healthcare providers about the needs of young women. In addition, LBBC expanded resources for women diagnosed before age 30, young women living with metastatic breast cancer and young African-American women, who reported different needs for and interests in health information. LBBC
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successfully expanded its program offerings to better serve young women. Preliminary evaluation data show LBBC’s new programs are increasing knowledge and support. This process demonstrates the benefits of using needs assessments to drive program development. This model can be used for other survivor populations, where knowledge of their needs and program offerings are lacking. PO73 Communication with young women with breast cancer L. Kourkouta1 , E. Fradelos2 , I. Papathanasiou3 , S.-H. Amprachim4 . Technological Educational Institute of Thessaloniki, Department of Nursing, Athens, Greece, 2 State Mental Hospital, 3rd Psychiatric Department, Athens, Greece, 3 Technological Educational Institute of Thessaly, Department of Nursing, Larisa, Greece, 4 Kat General Hospital, Department of 4th Orthopedic Clinic, Athens, Greece 1
Introduction: The art of clinical communication is essential for obtaining a good background and also for providing explanations, instructions and advice to young women with breast cancer. Aim: This retrospective study highlights the contribution of the communication to the cover of needs of young women with breast cancer. Materials and Methods: An extensive review of recent relevant literature in electronic databases (Pub med, Google Scholar) and in scientific journals was accomplished by the use of keywords: communication, breast cancer, young women. Results: Breast cancer is one of the most frequent cancers among the women population. The communication with the young women with breast cancer is an individual part of nursing and medicine art. It should not be based on the innate ability, but it should be based mainly on the appropriate training and experience gained from the practice. Basic principle for the good communication is the investigation of the problems that interfere or impede the nurses to provide psychological support to patients with breast cancer. Genuine mood from the part of the nurse is needed in order to understand and help these women. Conclusions: The communication between the nurse and the young woman with breast cancer is a process that starts with the first contact between the two and lasts as long as the therapeutic relationship. PO74 Knowledge about lymphedema, risk perception and primary prevention in breast cancer patients G. Kuznecova, S. Kuznecovs. Preventive Medicine Institute, Department of Cancer Research Laboratory, Riga, Latvia Background: One in five breast cancer patients undergoing surgery with lymph node dissection and radiation therapy develops lymphedema. There are still no standards for diagnosis and treatment. Education of prevention is main approach to decrease this disabling complication of breast cancer treatment. The purpose of this study was to examine knowledge about lymphedema and risk perception among breast cancer patients of different age groups. Methods: A questionnaire-based survey was carried out among 65 patients (under 40 years old) undergoing the breast cancer treatment (30 persons with symptoms of developed lymphedema and 35 persons without signs of this complication). The data were compared to similar patients age 40 and older. The duration of study is 5 years. Knowledge about lymphedema was assessed with a questionnaire created for this study. Patients rated their risk perception and methods used in the prevention of lymphedema. Results: The mean (SD) lymphedema knowledge score was 16.8% (4.6%) in patients with developed complication and 34.1%(6.8%) patients without lymphedema. Risk perception mean (SD) level was significantly higher in older patients without lymphedema. Older patients in both group were also more knowledgeable about
PO71 Breast cancer in the family – helping children cope S. Ginsberg. Rethink Breast Cancer, Department of Support & Education, Toronto, Canada One of the many unique challenges that young women with breast cancer face is raising young children, both during treatment and following treatment. Studies on the impact of parental cancer show children and teens experience distress when living with a parent with cancer, and that those with parents with more advanced disease appear to be the most distressed. However, children are amazingly resilient and a growing body of evidence also suggests that with the right information, attention and support, children can learn to cope with a cancer diagnosis in the family and the significant impact it may have on their daily lives. Rethink Breast Cancer created two resources and several programs to help support families coping with a breast cancer diagnosis. The Kids’ Guide to Mommy’s Breast Cancer is a creative and informative book for young children to enjoy and relate to as they and their families cope with the challenges of breast cancer and treatment. The Talking to your kids about breast cancer: A guide for parents booklet, available in both French and English, is intended to prepare families and care-givers with a greater understanding of the impact of cancer in the family and on children at different ages and stages of development. This presentation will provide a live demonstration of these resources and best practices for creating effective programming to support the needs of the entire family. The presenter will explore a model of support which includes: what and how to talk to children about breast cancer and its treatment; learn helpful strategies and tips to best support children’s coping patterns; learn how to recognize children’s cues for more information and support; and the importance of supporting parents/guardians in supporting their children. PO72 Using a national needs assessment to direct programs for young women affected by breast cancer in the United States A. Hanson1 , J. Guglielmino2 , K. Ashing3 . 1 Living Beyond Breast Cancer, Department of Young Women’s Initiative, Haverford, PA, USA, 2 Living Beyond Breast Cancer, Department of Programs, Haverford, PA, USA, 3 City of Hope Medical Center, Department of Center of Community Alliance for Research & Education, Durate, CA, USA Ten percent of breast cancer cases occur in US women under age 45. Although younger women are less likely than older women to be diagnosed, their survivorship needs can differ, making breast cancer a significant public health concern for this age group. To address this need, Living Beyond Breast Cancer developed new national programming for young women, after conducting a needs assessment and selecting program priorities based the findings. This project was funded through a cooperative agreement with the US Centers for Disease Control and Prevention. LBBC identified the needs of women diagnosed with breast cancer before age 45 and determined how young women prefer to receive emotional support and breast cancer information. Needs assessment phases were (1) Environmental scan to identify existing resources, (2) Key informant interviews with 12 healthcare providers, (3) Four focus groups with 32 women. (4) 85-question national online survey completed by 1,474 women diagnosed with breast cancer before age 45. LBBC analyzed findings by stage, ethnicity, age and time since diagnosis, setting program priorities based on these findings. The needs assessment findings led LBBC to create online resources for young women, expand the Breast Cancer Helpline, develop a Young Advocate Program, and educate healthcare providers about the needs of young women. In addition, LBBC expanded resources for women diagnosed before age 30, young women living with metastatic breast cancer and young African-American women, who reported different needs for and interests in health information. LBBC
S25
successfully expanded its program offerings to better serve young women. Preliminary evaluation data show LBBC’s new programs are increasing knowledge and support. This process demonstrates the benefits of using needs assessments to drive program development. This model can be used for other survivor populations, where knowledge of their needs and program offerings are lacking. PO73 Communication with young women with breast cancer L. Kourkouta1 , E. Fradelos2 , I. Papathanasiou3 , S.-H. Amprachim4 . Technological Educational Institute of Thessaloniki, Department of Nursing, Athens, Greece, 2 State Mental Hospital, 3rd Psychiatric Department, Athens, Greece, 3 Technological Educational Institute of Thessaly, Department of Nursing, Larisa, Greece, 4 Kat General Hospital, Department of 4th Orthopedic Clinic, Athens, Greece 1
Introduction: The art of clinical communication is essential for obtaining a good background and also for providing explanations, instructions and advice to young women with breast cancer. Aim: This retrospective study highlights the contribution of the communication to the cover of needs of young women with breast cancer. Materials and Methods: An extensive review of recent relevant literature in electronic databases (Pub med, Google Scholar) and in scientific journals was accomplished by the use of keywords: communication, breast cancer, young women. Results: Breast cancer is one of the most frequent cancers among the women population. The communication with the young women with breast cancer is an individual part of nursing and medicine art. It should not be based on the innate ability, but it should be based mainly on the appropriate training and experience gained from the practice. Basic principle for the good communication is the investigation of the problems that interfere or impede the nurses to provide psychological support to patients with breast cancer. Genuine mood from the part of the nurse is needed in order to understand and help these women. Conclusions: The communication between the nurse and the young woman with breast cancer is a process that starts with the first contact between the two and lasts as long as the therapeutic relationship. PO74 Knowledge about lymphedema, risk perception and primary prevention in breast cancer patients G. Kuznecova, S. Kuznecovs. Preventive Medicine Institute, Department of Cancer Research Laboratory, Riga, Latvia Background: One in five breast cancer patients undergoing surgery with lymph node dissection and radiation therapy develops lymphedema. There are still no standards for diagnosis and treatment. Education of prevention is main approach to decrease this disabling complication of breast cancer treatment. The purpose of this study was to examine knowledge about lymphedema and risk perception among breast cancer patients of different age groups. Methods: A questionnaire-based survey was carried out among 65 patients (under 40 years old) undergoing the breast cancer treatment (30 persons with symptoms of developed lymphedema and 35 persons without signs of this complication). The data were compared to similar patients age 40 and older. The duration of study is 5 years. Knowledge about lymphedema was assessed with a questionnaire created for this study. Patients rated their risk perception and methods used in the prevention of lymphedema. Results: The mean (SD) lymphedema knowledge score was 16.8% (4.6%) in patients with developed complication and 34.1%(6.8%) patients without lymphedema. Risk perception mean (SD) level was significantly higher in older patients without lymphedema. Older patients in both group were also more knowledgeable about