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Volume contents, keyword and author index
Volume 14 Numbers 1–5 Pages 1–452 (2010)
EONS News
1
Appetite and adverse effects associated with radiation therapy in patients with head and neck cancer Norimasa Ogama, Sumie Suzuki, Koji Umeshita, Tamami Kobayashi, Shoko Kaneko, Sakiko Kato and Yasuko Shimizu
3
Stress and nursing care needs of women with breast cancer during primary treatment: A qualitative study Hartmut Remmers, Martina Holtgräwe and Christiane Pinkert
11
Anxiety, depression and quality of life among Chinese breast cancer patients during adjuvant therapy Winnie K.W. So, Gene Marsh, W.M. Ling, F.Y. Leung, Joe C.K. Lo, Maggie Yeung and George K.H. Li
17
The importance of relationships in the experience of cancer: A re-working of the policy ideal of the whole-systems approach Nicola Illingworth, Liz Forbat, Gill Hubbard and Nora Kearney
23
Refinement of the Children’s International Mucositis Evaluation Scale (ChIMES): Child and parent perspectives on understandability, content validity and acceptability Deborah Tomlinson, Faith Gibson, Nathaniel Treister, Christina Baggott, Peter Judd, Eleanor Hendershot, Anne-Marie Maloney, John Doyle, Brian Feldman, Karis Kwong and Lillian Sung
29
Living with breast cancer, a Lebanese experience Myrna A.A. Doumit, Naji El Saghir, Huda Abu-Saad Huijer, Jane H. Kelley and Nada Nassar
42
Effect of acupressure on chemotherapy-induced nausea and vomiting in gynecologic cancer patients in Turkey Ayten Taspinar and Ahsen Sirin
49
Defining the scope of haematology nursing practice in Europe Erik Aerts, Monica Fliedner, Kathy Redmond and Alex Walton
55
Relationship between social support and fatigue in geriatric patients receiving outpatient chemotherapy Tug˘ba Karakoc¸ and Sabire Yurtsever
61
A census of the advanced and specialist cancer nursing workforce in England, Northern Ireland and Wales Paul Trevatt and Alison Leary
68
Evaluation of palliative care nursing education seminars Betty Ferrell, Rose Virani, Judith A. Paice, Nessa Coyle and Patrick Coyne
74
Abstracts International Society of Paediatric Oncology SIOP 41st Congress Meeting Sao Paola, Brazil October 5-9, 2009.
80
Noticeboard
84
Bibliography
86
Knowing the family: Interpretations of family nursing in oncology and palliative care Deborah L. McLeod, Dianne M. Tapp, Nancy J. Moules and Mary E. Campbell
93
The effect of symptom clusters on functional status and quality of life in women with breast cancer Marylin J. Dodd, Maria H. Cho, Bruce A. Cooper and Christine Miaskowski
101
The Portuguese version of the Body Image Scale (BIS) – psychometric properties in a sample of breast cancer patients Helena Moreira, Sónia Silva, Andreia Marques and Maria Cristina Canavarro 111 Patients’ self reports and caregivers’ perception of symptoms in Turkish cancer patients Öznur Usta Yes˛ilbalkan and Aliye Okgün
119
Men’s experiences of radical prostatectomy as treatment for prostate cancer Ella Walsh and Josephine Hegarty
125
Home administration of bortezomib: Making a difference to myeloma patients’ lives Teresa Meenaghan, Michael O’Dwyer, Patrick Hayden, Amjad Hayat, Margaret Murray and Maura Dowling
134
Quality of life and sexual functioning in gynecological cancer patients: Results from quantitative and qualitative data Nesrin Reis, Nezihe Kizilkaya Beji and Anahit Coskun
137
Adjuvant radiotherapy of women with breast cancer – Information, support and side-effects K. Sjövall, G. Strömbeck, A. Löfgren, P-O. Bendahl and B. Gunnars
147
How cancer survivors experience their changed body encountering others Dorte Malig Rasmussen, Helle Ploug Hansen and Beth Elverdam
154
Penile length shortening after radical prostatectomy: Men’s responses Wellam F. Yu Ko, Lesley F. Degner, Thomas F. Hack and Garry Schroeder
160
An exploratory study of positive life changes in Turkish women diagnosed with breast cancer Perihan Guner Kucukkaya
166
Noticeboard
174
Oncology Nursing Bibliography
175
Guest Editorial Family nursing in oncology care – Do we need a paradigm shift? Ulrika Östlund
181
The late effects of mantle field radiotherapy: The information and support needs of women survivors of Hodgkin’s disease Anne Grinyer 183 How would early detection be possible? An enquiry into cancer related knowledge, understanding and health seeking behaviour of urban black women in Tshwane, South Africa Johanna E. Maree and Susanna C.D. Wright
190
Implementation of an ultra-short hospital stay for breast cancer patients Birgitte Goldschmidt Mertz and Helene B.H. Williams
197
Clinical practices concerning central venous catheters in haematological patients R.S. Boersma and H.C. Schouten
200
Bisphosphonate-related osteonecrosis of the jaw in cancer patients: Implications for nurses Monica Morris and Susanne Cruickshank
205
The quality of life of family caregivers of cancer patients in the East of Turkey Nazlı Hacialioglu, Nadiye Özer, Elanur Yilmaz karabulutlu, Neşe Erdem and Behice Erci
211
Keeping courage during stem cell transplantation: A qualitative research Annemarie Coolbrandt and Mieke H.F. Grypdonck
218
Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: Findings from an ethnographic study Irene Tuffrey-Wijne, Jane Bernal and Sheila Hollins
224
Goal processes & self-efficacy related to psychological distress in head & neck cancer patients and their partners Marinella P.J. Offerman, Maya J. Schroevers, Lilly-Ann van der Velden, Maarten F. de Boer and Jean F.A. Pruyn
231
Women’s perceptions of home-based exercise performed during adjuvant chemotherapy for breast cancer Carolyn Ingram, Jean Wessel and Kerry S. Courneya
238
The benefit of meeting a stranger: Experiences with emotional support provided by nurses among Danish-born and migrant cancer patients M. Kristiansen, T. Tjørnhøj-Thomsen and A. Krasnik
244
Noticeboard
253
Oncology Nursing Bibliography
254
Guest Editorial Communication skills training in end of life care – Short of the mark? Sue Duke
261
A longitudinal study about the body image and psychosocial adjustment of breast cancer patients during the course of the disease Helena Moreira and Maria Cristina Canavarro
263
Exploring the information needs of patients with cancer of the rectum Gloria O’Connor, Vivien Coates and Siobhan O’Neill
271
Knowledge, attitudes and beliefs of Cypriot nurses on the handling of antineoplastic agents Maro Kyprianou, Margarita Kapsou, Vasilios Raftopoulos and Elpidoforos S. Soteriades
278
Ensnared by positivity: A constructivist perspective on ‘being positive’ in cancer care May McCreaddie, Sheila Payne and Katherine Froggatt
283
Analysis of causal models of diet for patients with head and neck cancer receiving radiation therapy Norimasa Ogama, Sumie Suzuki, Yoko Yasui, Katumi Azenishi and Yasuko Shimizu
291
End-of-life needs as perceived by terminally ill older adult patients, family and staff Merav Ben Natan, Doron Garfinkel and Irit Shachar
299
Cultural interrelationships and the lived experience of Pakistani breast cancer patients Maggi Banning, M. Hassan, S. Faisal and H. Hafeez
304
Prospective changes of the quality of life for patients newly diagnosed with oral cancer during the acute stage Hsiu-Fang Lee and Hsueh-Erh Liu
310
The validity and reliability of the Turkish version of the Quality of Life Index [QLI] (Cancer version) Gulbeyaz Can, Zehra Durna and Adnan Aydiner
316
Scope of practice of the breast care nurse: A comparison of health professional perspectives Liz Jones, Lori Leach, Suzanne Chambers and Stefano Occhipinti 322 Breast awareness within an intellectual disability setting Siobhan Kirby and Josephine Hegarty
328
Best practices in the management of toxicities related to anti-EGFR agents for metastatic colorectal cancer Jan Ouwerkerk and Christine Boers-Doets
337
Noticeboard
350
Oncology Nursing Bibliography
351
Guest Editorial Symptom management in oncology care – Where are we? Barbara A. Given
357
Emesis and gastrointestinal problems during radiotherapy: A comparison of performance of daily activities between patients experiencing nausea and patients free from nausea A. Enblom, G. Steineck and S. Börjeson
359
Management of skin reactions during radiotherapy in Flanders (Belgium): A study of nursing practice before and after the introduction of a skin care protocol Sven D’haese, Marleen Van Roy, Trees Bate, Paul Bijdekerke and Vincent Vinh-Hung 367 Relationship between mood disturbance and sleep quality in oncology outpatients at the initiation of radiation therapy Christina Van Onselen, Laura B. Dunn, Kathryn Lee, Marylin Dodd, Theresa Koetters, Claudia West, Steven M. Paul, Bradley E. Aouizerat, William Wara, Patrick Swift and Christine Miaskowski 373 Causal relationships among factors associated with cancer-related fatigue YoungMin Seo, HyunSoo Oh and WhaSook Seo
380
Cancer therapy-related symptoms and self-care in Thailand Ubolrat Piamjariyakul, Phoebe D. Williams, Somjit Prapakorn, Mira Kim, Lisa Park, Wilaiporn Rojjanasrirat and Arthur R. Williams
387
Depression in advanced cancer Greg Irving and Mari Lloyd-Williams
395
Quality of life, symptom experience and distress of lung cancer patients undergoing chemotherapy Semiha Akin, Gulbeyaz Can, Adnan Aydiner, Kursat Ozdilli and Zehra Durna
400
Symptom experience in patients with primary brain tumours: A longitudinal exploratory study Alex Molassiotis, Barbara Wilson, Lisa Brunton, Haseeb Chaudhary, Rao Gattamaneni and Catherine McBain 410 The state of science in the study of cancer symptom clusters Canhua Xiao
417
What do symptom scores mean: Observations on discrepancies when defining symptoms using words and numbers Ashlinder Gill, Patricia Daines and Debbie Selby 435 Assessment and management of nutritional challenges in children’s cancer care: A survey of current practice in the United Kingdom Karen Selwood, Evelyn Ward and Faith Gibson
439
Oncology Nursing Bibliography
447
E U RO P E A N J O U R N A L O F O N C O L O G Y N U R S I N G K E Y WO R D I N D E X
A Activities of daily living, 359 Acupressure, 49 Acute stage, 310 Adjuvant chemotherapy, 238 Adjuvant therapy, 17 ADL, 359 Adolescents, 183 Advanced practice, 205 Adverse effects, 3 Anti-EGFR agents, 337 Anxiety, 17, 373 Appearance investment, 263 Appearance, 154 Appetite, 3 Assessment, 439
B Being positive, 283 Bisphosphonates, 205 Body image scale, 111 Body image, 111, 263 Body, 154 Bone metastasis, 205 Bortezomib, 134 Brain tumours, 410 Breaking bad news, 224 Breast awareness, 328 Breast cancer surgery, 197 Breast cancer, 11, 17, 42, 111, 147, 166, 197, 205, 263, 304 Breast Cancer, 238 Breast care nurse, 322 Breast screening, 328 Breast self-examination, 328
E Early detection, 328 Education, 328 Elderly, 61 Emesis, 359 Emotional distress, 263 End of life, 74 End-of-life needs, 299 EORTC, 111 ESAS, 435 Ethnicity, 244 Exercise barriers, 238 Exercise facilitators, 238 Exercise perceptions, 238 Exercise, 238, 380 Experiences, 410
F
Families, 299 Family caregivers, 119, 211 Family nursing, 93 Fatigue, 61, 101, 380, 410 Female sexuality, 137 Follow-up, 147 Functional status, 101, 359
G Grounded theory, 283 Gynecologic cancer, 49, 137
H
C Cancer knowledge, 190 Cancer Nursing Workforce, 68 Cancer survivors, 154 Cancer, 111, 183, 211, 224, 244, 271, 359, 380, 387, 435 Care, 244 Caring, 119 Casual models of diet, 291 Central venous catheter-related infections, 200 Central venous catheter-related thrombosis, 200 Cetuximab, 337 Chemotherapy, 17, 49, 61, 387, 400 Clinical Nurse Specialists, 68 Cluster analysis, 101 Cognitive dysfunction, 410 Colorectal cancer, 337 Complementary care, 387 Constructivist, 283 Content analysis, Qualitative study, 238 Continuing professional education, 55 Coping, 218 Courage, 218 Culture, 304
D Death and dying, 224 Depression, 17, 101, 373, 395 Dermatologic, 337 Diarrhoea, 337 Dieticians, 439 Disclosure and information, 224 Dysgeusia, 3
Haematology nursing, 55 Head and neck cancer patients, 291 Head and neck cancer, 3, 231 Head and Neck cancer, 310 Health seeking behaviour, 190 Healthcare professional, 244 Home administration, 134 Hope, 218 Hospital stay, 197 Humour, 283 Hypomagnesaemia, 337
I In depth interviews, 42 Information needs, 271 Information, 183 Infusion reactions, 337 Instrument development, 29 Instrument refinement, 29 Instrument, 111 Intellectual disabilities/learning disabilities, 224 Intellectual disability, 328 Interactions, 283 International curriculum development, 74 International nursing education, 74 Interpersonal relationship, 23 Israel, 299
J Joint ownership of cancer, 23
L Learning needs, 55 Lived experience, 154, 218 Lung cancer, 316, 400
M Management, 395 Masculinity, 160 Memory loss, 410 Men’s health, 125 Mucositis assessment in children, 29 Multidisciplinary team, 322 Myeloma, 134, 205
N Nausea, 49 Needs, 11 Nurses, 299, 328 Nursing, 11, 42, 61, 147, 205, 211, 218, 231, 439 Nutrition, 439
O Occupational therapy, 359 Ocular, 337 Oncology patients, 373 Oncology, 93, 417 Oral cancer, 310 Oral mucositis, 3 Osteonecrosis of jaw, 205
P Paediatric Oncology, 439 Pain, 101 Palliative care, 74, 93, 395 Panitumumab, 337 Parents and children as content experts, 29 Partners, 231 Patient information, 55 Patient self reports, 119 Patient self-report, 435 Penile length shortening, 160 Person’s perspective, 11 Philosophical hermeneutics, 93 Physicians, 299 Physiotherapy, 359 PONV, 197 Portuguese version, 111 Positive life changes, 166 Positive thinking, 283 Positivity, 283 Posttraumatic growth, 166 Practice development, 55 Prevalence, 166 Prognosis, 224 Prostate cancer – adaptation, 125 Prostate cancer, 205 Psychological distress, 231 Psychology, 304 Psychosocial adjustment, 263
Q Qualitative design, 125 Qualitative methods, 304 Qualitative research, 154, 218, 244 Qualitative, 11, 42 Quality of Life Index – Cancer version, 316 Quality of life, 17, 101, 137, 211, 263, 310, 400
R Radiation dermatitis, 367 Radiation therapy, 3, 291, 367, 373, 387 Radical prostatectomy, 160 Radiotherapy, 17, 147, 367 Rectum, 271 Relational practice, 93 Reliability, 316 Rotterdam Symptom Checklist, 119
S Scope of practice, 55, 322 Screening, 395 Secondary cancer, 205 Self image, 160 Self-care, 387 Self-efficacy, 231 Self-regulation, 231 Sexuality assessment, 137 Side-effects, 147, 359 Skin care, 367 Skin reactions, 367 Sleep disturbance, 101, 373 Social support, 61, 244 South Africa, 190 Specialist Cancer Nurses, 68 Stem cell transplantation, 218 Stoma, 271 Strains, 11 Structural equation modeling, 291 Support, 183 Surgery, 271 Survey of practice, 439 Symptom assessment, 119, 435 Symptom cluster, 101 Symptom clusters, 417 Symptom experience, 101, 417 Symptom monitoring by checklist, 387 Symptoms, 400, 410
T Terminally ill older adult patients, 299 Toxicities, 337 Treatment, 271 TRSC (Thai) version, 387 Turkish women, 166
U Understanding cancer, 190 Utrecht School, 42
V Validity, 316 Vomiting, 49, 359 Vulnerable, survivorship, 183
W Well-being, 137 Whole systems working, 23 Women, 42 Women’s health, 304
X Xerostomia, 3
E U RO P E A N J O U R N A L O F O N C O L O G Y N U R S I N G AUTHOR INDEX
A Abu-Saad Huijer, Huda, 42 Aerts, Erik, 55 Akin, Semiha, 400 Aouizerat, Bradley E., 373 Aydiner, Adnan, 316, 400 Azenishi, Katumi, 291
B
Baggott, Christina, 29 Banning, Maggi, 304 Bate, Trees, 367 Beji, Nezihe Kizilkaya, 137 Ben Natan, Merav, 299 Bendahl, P-O., 147 Bernal, Jane, 224 Bijdekerke, Paul, 367 Boers-Doets, Christine, 337 Boersma, R.S., 200 Börjeson, S., 359 Brunton, Lisa, 410
C Campbell, Mary E., 93 Can, Gulbeyaz, 316, 400 Canavarro, Maria Cristina, 111, 263 Chambers, Suzanne, 322 Chaudhary, Haseeb, 410 Cho, Maria H., 101 Coates, Vivien, 271 Coolbrandt, Annemarie, 218 Cooper, Bruce A., 101 Coskun, Anahit, 137 Courneya, Kerry S., 238 Coyle, Nessa, 74 Coyne, Patrick, 74 Cruickshank, Susanne, 205
D D’haese, Sven, 367 Daines, Patricia, 435 de Boer, Maarten F., 231 Degner, Lesley F., 160 Dodd, Marylin J., 101 Dodd, Marylin, 373 Doumit, Myrna A.A., 42 Dowling, Maura, 134 Doyle, John, 29 Duke, Sue, 261 Dunn, Laura B., 373 Durna, Zehra, 316, 400
E El Saghir, Naji, 42 Elverdam, Beth, 154 Enblom, A., 359 Erci, Behice, 211 Erdem, Nes¸e, 211
F Faisal, S., 304 Feldman, Brian, 29 Ferrell, Betty, 74 Fliedner, Monica, 55 Forbat, Liz, 23 Froggatt, Katherine, 283
G Garfinkel, Doron, 299 Gattamaneni, Rao, 410 Gibson, Faith, 29, 439 Gill, Ashlinder, 435 Given, Barbara A., 357 Grinyer, Anne, 183 Grypdonck, Mieke H.F., 218 Gunnars, B., 147
H Hacialioglu, Nazlı, 211 Hack, Thomas F., 160 Hafeez, H., 304 Hansen, Helle Ploug, 154 Hassan, M., 304 Hayat, Amjad, 134 Hayden, Patrick, 134 Hegarty, Josephine, 125, 328 Hendershot, Eleanor, 29 Hollins, Sheila, 224 Holtgräwe, Martina, 11 Hubbard, Gill, 23
I Illingworth, Nicola, 23 Ingram, Carolyn, 238 Irving, Greg, 395
J Jones, Liz, 322 Judd, Peter, 29
K
Kaneko, Shoko, 3 Kapsou, Margarita, 278 Karakoç, Tuğba, 61 Kato, Sakiko, 3 Kearney, Nora, 23 Kelley, Jane H., 42 Kim, Mira, 387 Kirby, Siobhan, 328 Kobayashi, Tamami, 3 Koetters, Theresa, 373 Krasnik, A., 244 Kristiansen, M., 244 Kucukkaya, Perihan Guner, 166 Kwong, Karis, 29 Kyprianou, Maro, 278
L
Leach, Lori, 322 Leary, Alison, 68 Lee, Hsiu-Fang, 310 Lee, Kathryn, 373 Leung, F.Y., 17 Li, George K.H., 17 Ling, W.M., 17 Liu, Hsueh-Erh, 310 Lloyd-Williams, Mari, 395 Lo, Joe C.K., 17 Löfgren, A., 147
M
Maloney, Anne-Marie, 29 Maree, Johanna E., 190 Marques, Andreia, 111 Marsh, Gene, 17 McBain, Catherine, 410 McCreaddie, May, 283 McLeod, Deborah L., 93 Meenaghan, Teresa, 134 Mertz, Birgitte Goldschmidt, 197 Miaskowski, Christine, 101, 373 Molassiotis, Alex, 410 Moreira, Helena, 111, 263 Morris, Monica, 205 Moules, Nancy J., 93 Murray, Margaret, 134
N
S
Schouten, H.C., 200 Schroeder, Garry, 160 Schroevers, Maya J., 231 Selby, Debbie, 435 Selwood, Karen, 439 Seo, WhaSook, 380 Seo, YoungMin, 380 Shachar, Irit, 299 Shimizu, Yasuko, 3, 291 Silva, Sónia, 111 Sirin, Ahsen, 49 Sjövall, K., 147 So, Winnie K.W., 17 Soteriades, Elpidoforos S., 278 Steineck, G., 359 Strömbeck, G., 147 Sung, Lillian, 29 Suzuki, Sumie, 3, 291 Swift, Patrick, 373
T
Tapp, Dianne M., 93 Taspinar, Ayten, 49 Tjørnhøj-Thomsen, T., 244 Tomlinson, Deborah, 29 Treister, Nathaniel, 29 Trevatt, Paul, 68 Tuffrey-Wijne, Irene, 224
U Umeshita, Koji, 3
Nassar, Nada, 42
O O’Connor, Gloria, 271 O’Dwyer, Michael, 134 O’Neill, Siobhan, 271 Occhipinti, Stefano, 322 Offerman, Marinella P.J., 231 Ogama, Norimasa, 3, 291 Oh, HyunSoo, 380 Okgün, Aliye, 119 Östlund, Ulrika, 181 Ouwerkerk, Jan, 337 Ozdilli, Kursat, 400 Özer, Nadiye, 211
P Paice, Judith A., 74 Park, Lisa, 387 Paul, Steven M., 373 Payne, Sheila, 283 Piamjariyakul, Ubolrat, 387 Pinkert, Christiane, 11 Prapakorn, Somjit, 387 Pruyn, Jean F.A., 231
R Raftopoulos, Vasilios, 278 Rasmussen, Dorte Malig, 154 Redmond, Kathy, 55 Reis, Nesrin, 137 Remmers, Hartmut, 11 Rojjanasrirat, Wilaiporn, 387
V van der Velden, Lilly-Ann, 231 Van Onselen, Christina, 373 Van Roy, Marleen, 367 Vinh-Hung, Vincent, 367 Virani, Rose, 74
W Walsh, Ella, 125 Walton, Alex, 55 Wara, William, 373 Ward, Evelyn, 439 Wessel, Jean, 238 West, Claudia, 373 Williams, Arthur R., 387 Williams, Helene B.H., 197 Williams, Phoebe D., 387 Wilson, Barbara, 410 Wright, Susanna C.D., 190
X Xiao, Canhua, 417
Y Yes¸ilbalkan, Öznur Usta, 119 Yeung, Maggie, 17 Yilmaz karabulutlu, Elanur, 211 Yoko Yasui, 291 Yu Ko, Wellam F., 160 Yurtsever, Sabire, 61
EONS News
1
Appetite and adverse effects associated with radiation therapy in patients with head and neck cancer Norimasa Ogama, Sumie Suzuki, Koji Umeshita, Tamami Kobayashi, Shoko Kaneko, Sakiko Kato and Yasuko Shimizu
3
Stress and nursing care needs of women with breast cancer during primary treatment: A qualitative study Hartmut Remmers, Martina Holtgräwe and Christiane Pinkert
11
Anxiety, depression and quality of life among Chinese breast cancer patients during adjuvant therapy Winnie K.W. So, Gene Marsh, W.M. Ling, F.Y. Leung, Joe C.K. Lo, Maggie Yeung and George K.H. Li
17
The importance of relationships in the experience of cancer: A re-working of the policy ideal of the whole-systems approach Nicola Illingworth, Liz Forbat, Gill Hubbard and Nora Kearney
23
Refinement of the Children’s International Mucositis Evaluation Scale (ChIMES): Child and parent perspectives on understandability, content validity and acceptability Deborah Tomlinson, Faith Gibson, Nathaniel Treister, Christina Baggott, Peter Judd, Eleanor Hendershot, Anne-Marie Maloney, John Doyle, Brian Feldman, Karis Kwong and Lillian Sung
29
Living with breast cancer, a Lebanese experience Myrna A.A. Doumit, Naji El Saghir, Huda Abu-Saad Huijer, Jane H. Kelley and Nada Nassar
42
Effect of acupressure on chemotherapy-induced nausea and vomiting in gynecologic cancer patients in Turkey Ayten Taspinar and Ahsen Sirin
49
Defining the scope of haematology nursing practice in Europe Erik Aerts, Monica Fliedner, Kathy Redmond and Alex Walton
55
Relationship between social support and fatigue in geriatric patients receiving outpatient chemotherapy Tug˘ba Karakoc¸ and Sabire Yurtsever
61
A census of the advanced and specialist cancer nursing workforce in England, Northern Ireland and Wales Paul Trevatt and Alison Leary
68
Evaluation of palliative care nursing education seminars Betty Ferrell, Rose Virani, Judith A. Paice, Nessa Coyle and Patrick Coyne
74
Abstracts International Society of Paediatric Oncology SIOP 41st Congress Meeting Sao Paola, Brazil October 5-9, 2009.
80
Noticeboard
84
Bibliography
86
Knowing the family: Interpretations of family nursing in oncology and palliative care Deborah L. McLeod, Dianne M. Tapp, Nancy J. Moules and Mary E. Campbell
93
The effect of symptom clusters on functional status and quality of life in women with breast cancer Marylin J. Dodd, Maria H. Cho, Bruce A. Cooper and Christine Miaskowski
101
The Portuguese version of the Body Image Scale (BIS) – psychometric properties in a sample of breast cancer patients Helena Moreira, Sónia Silva, Andreia Marques and Maria Cristina Canavarro 111 Patients’ self reports and caregivers’ perception of symptoms in Turkish cancer patients Öznur Usta Yes˛ilbalkan and Aliye Okgün
119
Men’s experiences of radical prostatectomy as treatment for prostate cancer Ella Walsh and Josephine Hegarty
125
Home administration of bortezomib: Making a difference to myeloma patients’ lives Teresa Meenaghan, Michael O’Dwyer, Patrick Hayden, Amjad Hayat, Margaret Murray and Maura Dowling
134
Quality of life and sexual functioning in gynecological cancer patients: Results from quantitative and qualitative data Nesrin Reis, Nezihe Kizilkaya Beji and Anahit Coskun
137
Adjuvant radiotherapy of women with breast cancer – Information, support and side-effects K. Sjövall, G. Strömbeck, A. Löfgren, P-O. Bendahl and B. Gunnars
147
How cancer survivors experience their changed body encountering others Dorte Malig Rasmussen, Helle Ploug Hansen and Beth Elverdam
154
Penile length shortening after radical prostatectomy: Men’s responses Wellam F. Yu Ko, Lesley F. Degner, Thomas F. Hack and Garry Schroeder
160
An exploratory study of positive life changes in Turkish women diagnosed with breast cancer Perihan Guner Kucukkaya
166
Noticeboard
174
Oncology Nursing Bibliography
175
Guest Editorial Family nursing in oncology care – Do we need a paradigm shift? Ulrika Östlund
181
The late effects of mantle field radiotherapy: The information and support needs of women survivors of Hodgkin’s disease Anne Grinyer 183 How would early detection be possible? An enquiry into cancer related knowledge, understanding and health seeking behaviour of urban black women in Tshwane, South Africa Johanna E. Maree and Susanna C.D. Wright
190
Implementation of an ultra-short hospital stay for breast cancer patients Birgitte Goldschmidt Mertz and Helene B.H. Williams
197
Clinical practices concerning central venous catheters in haematological patients R.S. Boersma and H.C. Schouten
200
Bisphosphonate-related osteonecrosis of the jaw in cancer patients: Implications for nurses Monica Morris and Susanne Cruickshank
205
The quality of life of family caregivers of cancer patients in the East of Turkey Nazlı Hacialioglu, Nadiye Özer, Elanur Yilmaz karabulutlu, Neşe Erdem and Behice Erci
211
Keeping courage during stem cell transplantation: A qualitative research Annemarie Coolbrandt and Mieke H.F. Grypdonck
218
Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: Findings from an ethnographic study Irene Tuffrey-Wijne, Jane Bernal and Sheila Hollins
224
Goal processes & self-efficacy related to psychological distress in head & neck cancer patients and their partners Marinella P.J. Offerman, Maya J. Schroevers, Lilly-Ann van der Velden, Maarten F. de Boer and Jean F.A. Pruyn
231
Women’s perceptions of home-based exercise performed during adjuvant chemotherapy for breast cancer Carolyn Ingram, Jean Wessel and Kerry S. Courneya
238
The benefit of meeting a stranger: Experiences with emotional support provided by nurses among Danish-born and migrant cancer patients M. Kristiansen, T. Tjørnhøj-Thomsen and A. Krasnik
244
Noticeboard
253
Oncology Nursing Bibliography
254
Guest Editorial Communication skills training in end of life care – Short of the mark? Sue Duke
261
A longitudinal study about the body image and psychosocial adjustment of breast cancer patients during the course of the disease Helena Moreira and Maria Cristina Canavarro
263
Exploring the information needs of patients with cancer of the rectum Gloria O’Connor, Vivien Coates and Siobhan O’Neill
271
Knowledge, attitudes and beliefs of Cypriot nurses on the handling of antineoplastic agents Maro Kyprianou, Margarita Kapsou, Vasilios Raftopoulos and Elpidoforos S. Soteriades
278
Ensnared by positivity: A constructivist perspective on ‘being positive’ in cancer care May McCreaddie, Sheila Payne and Katherine Froggatt
283
Analysis of causal models of diet for patients with head and neck cancer receiving radiation therapy Norimasa Ogama, Sumie Suzuki, Yoko Yasui, Katumi Azenishi and Yasuko Shimizu
291
End-of-life needs as perceived by terminally ill older adult patients, family and staff Merav Ben Natan, Doron Garfinkel and Irit Shachar
299
Cultural interrelationships and the lived experience of Pakistani breast cancer patients Maggi Banning, M. Hassan, S. Faisal and H. Hafeez
304
Prospective changes of the quality of life for patients newly diagnosed with oral cancer during the acute stage Hsiu-Fang Lee and Hsueh-Erh Liu
310
The validity and reliability of the Turkish version of the Quality of Life Index [QLI] (Cancer version) Gulbeyaz Can, Zehra Durna and Adnan Aydiner
316
Scope of practice of the breast care nurse: A comparison of health professional perspectives Liz Jones, Lori Leach, Suzanne Chambers and Stefano Occhipinti 322 Breast awareness within an intellectual disability setting Siobhan Kirby and Josephine Hegarty
328
Best practices in the management of toxicities related to anti-EGFR agents for metastatic colorectal cancer Jan Ouwerkerk and Christine Boers-Doets
337
Noticeboard
350
Oncology Nursing Bibliography
351
Guest Editorial Symptom management in oncology care – Where are we? Barbara A. Given
357
Emesis and gastrointestinal problems during radiotherapy: A comparison of performance of daily activities between patients experiencing nausea and patients free from nausea A. Enblom, G. Steineck and S. Börjeson
359
Management of skin reactions during radiotherapy in Flanders (Belgium): A study of nursing practice before and after the introduction of a skin care protocol Sven D’haese, Marleen Van Roy, Trees Bate, Paul Bijdekerke and Vincent Vinh-Hung 367 Relationship between mood disturbance and sleep quality in oncology outpatients at the initiation of radiation therapy Christina Van Onselen, Laura B. Dunn, Kathryn Lee, Marylin Dodd, Theresa Koetters, Claudia West, Steven M. Paul, Bradley E. Aouizerat, William Wara, Patrick Swift and Christine Miaskowski 373 Causal relationships among factors associated with cancer-related fatigue YoungMin Seo, HyunSoo Oh and WhaSook Seo
380
Cancer therapy-related symptoms and self-care in Thailand Ubolrat Piamjariyakul, Phoebe D. Williams, Somjit Prapakorn, Mira Kim, Lisa Park, Wilaiporn Rojjanasrirat and Arthur R. Williams
387
Depression in advanced cancer Greg Irving and Mari Lloyd-Williams
395
Quality of life, symptom experience and distress of lung cancer patients undergoing chemotherapy Semiha Akin, Gulbeyaz Can, Adnan Aydiner, Kursat Ozdilli and Zehra Durna
400
Symptom experience in patients with primary brain tumours: A longitudinal exploratory study Alex Molassiotis, Barbara Wilson, Lisa Brunton, Haseeb Chaudhary, Rao Gattamaneni and Catherine McBain 410 The state of science in the study of cancer symptom clusters Canhua Xiao
417
What do symptom scores mean: Observations on discrepancies when defining symptoms using words and numbers Ashlinder Gill, Patricia Daines and Debbie Selby 435 Assessment and management of nutritional challenges in children’s cancer care: A survey of current practice in the United Kingdom Karen Selwood, Evelyn Ward and Faith Gibson
439
Oncology Nursing Bibliography
447
E U RO P E A N J O U R N A L O F O N C O L O G Y N U R S I N G K E Y WO R D I N D E X
A Activities of daily living, 359 Acupressure, 49 Acute stage, 310 Adjuvant chemotherapy, 238 Adjuvant therapy, 17 ADL, 359 Adolescents, 183 Advanced practice, 205 Adverse effects, 3 Anti-EGFR agents, 337 Anxiety, 17, 373 Appearance investment, 263 Appearance, 154 Appetite, 3 Assessment, 439
B Being positive, 283 Bisphosphonates, 205 Body image scale, 111 Body image, 111, 263 Body, 154 Bone metastasis, 205 Bortezomib, 134 Brain tumours, 410 Breaking bad news, 224 Breast awareness, 328 Breast cancer surgery, 197 Breast cancer, 11, 17, 42, 111, 147, 166, 197, 205, 263, 304 Breast Cancer, 238 Breast care nurse, 322 Breast screening, 328 Breast self-examination, 328
E Early detection, 328 Education, 328 Elderly, 61 Emesis, 359 Emotional distress, 263 End of life, 74 End-of-life needs, 299 EORTC, 111 ESAS, 435 Ethnicity, 244 Exercise barriers, 238 Exercise facilitators, 238 Exercise perceptions, 238 Exercise, 238, 380 Experiences, 410
F
Families, 299 Family caregivers, 119, 211 Family nursing, 93 Fatigue, 61, 101, 380, 410 Female sexuality, 137 Follow-up, 147 Functional status, 101, 359
G Grounded theory, 283 Gynecologic cancer, 49, 137
H
C Cancer knowledge, 190 Cancer Nursing Workforce, 68 Cancer survivors, 154 Cancer, 111, 183, 211, 224, 244, 271, 359, 380, 387, 435 Care, 244 Caring, 119 Casual models of diet, 291 Central venous catheter-related infections, 200 Central venous catheter-related thrombosis, 200 Cetuximab, 337 Chemotherapy, 17, 49, 61, 387, 400 Clinical Nurse Specialists, 68 Cluster analysis, 101 Cognitive dysfunction, 410 Colorectal cancer, 337 Complementary care, 387 Constructivist, 283 Content analysis, Qualitative study, 238 Continuing professional education, 55 Coping, 218 Courage, 218 Culture, 304
D Death and dying, 224 Depression, 17, 101, 373, 395 Dermatologic, 337 Diarrhoea, 337 Dieticians, 439 Disclosure and information, 224 Dysgeusia, 3
Haematology nursing, 55 Head and neck cancer patients, 291 Head and neck cancer, 3, 231 Head and Neck cancer, 310 Health seeking behaviour, 190 Healthcare professional, 244 Home administration, 134 Hope, 218 Hospital stay, 197 Humour, 283 Hypomagnesaemia, 337
I In depth interviews, 42 Information needs, 271 Information, 183 Infusion reactions, 337 Instrument development, 29 Instrument refinement, 29 Instrument, 111 Intellectual disabilities/learning disabilities, 224 Intellectual disability, 328 Interactions, 283 International curriculum development, 74 International nursing education, 74 Interpersonal relationship, 23 Israel, 299
J Joint ownership of cancer, 23
L Learning needs, 55 Lived experience, 154, 218 Lung cancer, 316, 400
M Management, 395 Masculinity, 160 Memory loss, 410 Men’s health, 125 Mucositis assessment in children, 29 Multidisciplinary team, 322 Myeloma, 134, 205
N Nausea, 49 Needs, 11 Nurses, 299, 328 Nursing, 11, 42, 61, 147, 205, 211, 218, 231, 439 Nutrition, 439
O Occupational therapy, 359 Ocular, 337 Oncology patients, 373 Oncology, 93, 417 Oral cancer, 310 Oral mucositis, 3 Osteonecrosis of jaw, 205
P Paediatric Oncology, 439 Pain, 101 Palliative care, 74, 93, 395 Panitumumab, 337 Parents and children as content experts, 29 Partners, 231 Patient information, 55 Patient self reports, 119 Patient self-report, 435 Penile length shortening, 160 Person’s perspective, 11 Philosophical hermeneutics, 93 Physicians, 299 Physiotherapy, 359 PONV, 197 Portuguese version, 111 Positive life changes, 166 Positive thinking, 283 Positivity, 283 Posttraumatic growth, 166 Practice development, 55 Prevalence, 166 Prognosis, 224 Prostate cancer – adaptation, 125 Prostate cancer, 205 Psychological distress, 231 Psychology, 304 Psychosocial adjustment, 263
Q Qualitative design, 125 Qualitative methods, 304 Qualitative research, 154, 218, 244 Qualitative, 11, 42 Quality of Life Index – Cancer version, 316 Quality of life, 17, 101, 137, 211, 263, 310, 400
R Radiation dermatitis, 367 Radiation therapy, 3, 291, 367, 373, 387 Radical prostatectomy, 160 Radiotherapy, 17, 147, 367 Rectum, 271 Relational practice, 93 Reliability, 316 Rotterdam Symptom Checklist, 119
S Scope of practice, 55, 322 Screening, 395 Secondary cancer, 205 Self image, 160 Self-care, 387 Self-efficacy, 231 Self-regulation, 231 Sexuality assessment, 137 Side-effects, 147, 359 Skin care, 367 Skin reactions, 367 Sleep disturbance, 101, 373 Social support, 61, 244 South Africa, 190 Specialist Cancer Nurses, 68 Stem cell transplantation, 218 Stoma, 271 Strains, 11 Structural equation modeling, 291 Support, 183 Surgery, 271 Survey of practice, 439 Symptom assessment, 119, 435 Symptom cluster, 101 Symptom clusters, 417 Symptom experience, 101, 417 Symptom monitoring by checklist, 387 Symptoms, 400, 410
T Terminally ill older adult patients, 299 Toxicities, 337 Treatment, 271 TRSC (Thai) version, 387 Turkish women, 166
U Understanding cancer, 190 Utrecht School, 42
V Validity, 316 Vomiting, 49, 359 Vulnerable, survivorship, 183
W Well-being, 137 Whole systems working, 23 Women, 42 Women’s health, 304
X Xerostomia, 3
E U RO P E A N J O U R N A L O F O N C O L O G Y N U R S I N G AUTHOR INDEX
A Abu-Saad Huijer, Huda, 42 Aerts, Erik, 55 Akin, Semiha, 400 Aouizerat, Bradley E., 373 Aydiner, Adnan, 316, 400 Azenishi, Katumi, 291
B
Baggott, Christina, 29 Banning, Maggi, 304 Bate, Trees, 367 Beji, Nezihe Kizilkaya, 137 Ben Natan, Merav, 299 Bendahl, P-O., 147 Bernal, Jane, 224 Bijdekerke, Paul, 367 Boers-Doets, Christine, 337 Boersma, R.S., 200 Börjeson, S., 359 Brunton, Lisa, 410
C Campbell, Mary E., 93 Can, Gulbeyaz, 316, 400 Canavarro, Maria Cristina, 111, 263 Chambers, Suzanne, 322 Chaudhary, Haseeb, 410 Cho, Maria H., 101 Coates, Vivien, 271 Coolbrandt, Annemarie, 218 Cooper, Bruce A., 101 Coskun, Anahit, 137 Courneya, Kerry S., 238 Coyle, Nessa, 74 Coyne, Patrick, 74 Cruickshank, Susanne, 205
D D’haese, Sven, 367 Daines, Patricia, 435 de Boer, Maarten F., 231 Degner, Lesley F., 160 Dodd, Marylin J., 101 Dodd, Marylin, 373 Doumit, Myrna A.A., 42 Dowling, Maura, 134 Doyle, John, 29 Duke, Sue, 261 Dunn, Laura B., 373 Durna, Zehra, 316, 400
E El Saghir, Naji, 42 Elverdam, Beth, 154 Enblom, A., 359 Erci, Behice, 211 Erdem, Nes¸e, 211
F Faisal, S., 304 Feldman, Brian, 29 Ferrell, Betty, 74 Fliedner, Monica, 55 Forbat, Liz, 23 Froggatt, Katherine, 283
G Garfinkel, Doron, 299 Gattamaneni, Rao, 410 Gibson, Faith, 29, 439 Gill, Ashlinder, 435 Given, Barbara A., 357 Grinyer, Anne, 183 Grypdonck, Mieke H.F., 218 Gunnars, B., 147
H Hacialioglu, Nazlı, 211 Hack, Thomas F., 160 Hafeez, H., 304 Hansen, Helle Ploug, 154 Hassan, M., 304 Hayat, Amjad, 134 Hayden, Patrick, 134 Hegarty, Josephine, 125, 328 Hendershot, Eleanor, 29 Hollins, Sheila, 224 Holtgräwe, Martina, 11 Hubbard, Gill, 23
I Illingworth, Nicola, 23 Ingram, Carolyn, 238 Irving, Greg, 395
J Jones, Liz, 322 Judd, Peter, 29
K
Kaneko, Shoko, 3 Kapsou, Margarita, 278 Karakoç, Tuğba, 61 Kato, Sakiko, 3 Kearney, Nora, 23 Kelley, Jane H., 42 Kim, Mira, 387 Kirby, Siobhan, 328 Kobayashi, Tamami, 3 Koetters, Theresa, 373 Krasnik, A., 244 Kristiansen, M., 244 Kucukkaya, Perihan Guner, 166 Kwong, Karis, 29 Kyprianou, Maro, 278
L
Leach, Lori, 322 Leary, Alison, 68 Lee, Hsiu-Fang, 310 Lee, Kathryn, 373 Leung, F.Y., 17 Li, George K.H., 17 Ling, W.M., 17 Liu, Hsueh-Erh, 310 Lloyd-Williams, Mari, 395 Lo, Joe C.K., 17 Löfgren, A., 147
M
Maloney, Anne-Marie, 29 Maree, Johanna E., 190 Marques, Andreia, 111 Marsh, Gene, 17 McBain, Catherine, 410 McCreaddie, May, 283 McLeod, Deborah L., 93 Meenaghan, Teresa, 134 Mertz, Birgitte Goldschmidt, 197 Miaskowski, Christine, 101, 373 Molassiotis, Alex, 410 Moreira, Helena, 111, 263 Morris, Monica, 205 Moules, Nancy J., 93 Murray, Margaret, 134
N
S
Schouten, H.C., 200 Schroeder, Garry, 160 Schroevers, Maya J., 231 Selby, Debbie, 435 Selwood, Karen, 439 Seo, WhaSook, 380 Seo, YoungMin, 380 Shachar, Irit, 299 Shimizu, Yasuko, 3, 291 Silva, Sónia, 111 Sirin, Ahsen, 49 Sjövall, K., 147 So, Winnie K.W., 17 Soteriades, Elpidoforos S., 278 Steineck, G., 359 Strömbeck, G., 147 Sung, Lillian, 29 Suzuki, Sumie, 3, 291 Swift, Patrick, 373
T
Tapp, Dianne M., 93 Taspinar, Ayten, 49 Tjørnhøj-Thomsen, T., 244 Tomlinson, Deborah, 29 Treister, Nathaniel, 29 Trevatt, Paul, 68 Tuffrey-Wijne, Irene, 224
U Umeshita, Koji, 3
Nassar, Nada, 42
O O’Connor, Gloria, 271 O’Dwyer, Michael, 134 O’Neill, Siobhan, 271 Occhipinti, Stefano, 322 Offerman, Marinella P.J., 231 Ogama, Norimasa, 3, 291 Oh, HyunSoo, 380 Okgün, Aliye, 119 Östlund, Ulrika, 181 Ouwerkerk, Jan, 337 Ozdilli, Kursat, 400 Özer, Nadiye, 211
P Paice, Judith A., 74 Park, Lisa, 387 Paul, Steven M., 373 Payne, Sheila, 283 Piamjariyakul, Ubolrat, 387 Pinkert, Christiane, 11 Prapakorn, Somjit, 387 Pruyn, Jean F.A., 231
R Raftopoulos, Vasilios, 278 Rasmussen, Dorte Malig, 154 Redmond, Kathy, 55 Reis, Nesrin, 137 Remmers, Hartmut, 11 Rojjanasrirat, Wilaiporn, 387
V van der Velden, Lilly-Ann, 231 Van Onselen, Christina, 373 Van Roy, Marleen, 367 Vinh-Hung, Vincent, 367 Virani, Rose, 74
W Walsh, Ella, 125 Walton, Alex, 55 Wara, William, 373 Ward, Evelyn, 439 Wessel, Jean, 238 West, Claudia, 373 Williams, Arthur R., 387 Williams, Helene B.H., 197 Williams, Phoebe D., 387 Wilson, Barbara, 410 Wright, Susanna C.D., 190
X Xiao, Canhua, 417
Y Yes¸ilbalkan, Öznur Usta, 119 Yeung, Maggie, 17 Yilmaz karabulutlu, Elanur, 211 Yoko Yasui, 291 Yu Ko, Wellam F., 160 Yurtsever, Sabire, 61